ArticleJournal of the American Geriatrics Society2022
Giving up on the objective of providing goal-concordant care: Advance care planning for improving caregiver outcomes.
Article in Journal of the American Geriatrics Society, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04922320 (Effect of Patient Priorities Care Implementation in Older Veterans With Multiple Chronic Conditions), which is not on this map. Cited by 31 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Effect of Patient Priorities Care Implementation in Older Veterans With Multiple Chronic Conditions
Who cites it
31 citing papers in PubMed, 46 citations in OpenAlex.
- Advance care planning impact on caregivers and end-of-life care in advanced cancer.Journal of the National Cancer Institute · 2026Trial
- Raising awareness and preparation for what may come: next of kin experiences of advance care planning with frail, home-dwelling older adults in geriatric units.BMC health services research · 2025Trial
- Sharing health care wishes among older adults with cognitive impairment in primary care: Results from a randomized controlled trial.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2024Trial
- The Value of Advance Care Planning for Spokespersons of Patients With Advanced Illness.Journal of pain and symptom management · 2023Trial
- Prognostic disclosure, end-of-life communication, and social support associated with distinct dyadic death-preparedness states among cancer dyads.The oncologist · 2026Article
- New horizons in advance care planning: narratives, identity and cultural humility.Age and ageing · 2026Review
- Exploring the Feasibility of the LEAD Trial: Online Dyadic Dementia Care Planning for Early Alzheimer's and Other Dementias.The American journal of hospice & palliative care · 2025Article
- Nurses' engagement in advance care planning practices: A descriptive cross-sectional study.Journal of clinical nursing · 2025Article
- Trust in Physicians and End-of-Life Discussions and Preferences for Place of Care Among US Chinese Older Adults.Journal of the American Geriatrics Society · 2025Article
- Frailty as a Predictor of Post-Traumatic Stress Disorder After Advance Care Planning Communication Intervention by Trained Care Managers in Long-Term Care Service Users in Japan: A Secondary Analysis.Journal of personalized medicine · 2025Article
- Preparing Surrogates for Decision-Making: Development and Pilot Testing of Prepare for Their Care.Journal of pain and symptom management · 2025Article
- Optimizing Care Planning for Older Adults in Primary Care.JAMA internal medicine · 2025Article
- Advance directives prior to COVID-19 diagnosis in a United States national healthcare system.PloS one · 2025Article
- Advance care planning in adults ages 80 years and older with impaired cognition: Using actual conversations to examine best practices.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Article
- Practical approaches to the tasks of preserving autonomy and respecting vulnerability among critically ill adult patients: a narrative review.Critical care science · 2025Review
- A conceptual model of the nurse's role as primary palliative care provider in goals of care communication.PEC innovation · 2024Article
- Feasibility and Effectiveness of Virtual Group Advance Care Planning Visits During the COVID-19 Pandemic.The American journal of hospice & palliative care · 2024Article
- Advance care planning in patients with respiratory failure.European respiratory review : an official journal of the European Respiratory Society · 2024Review
- Making advance care planning easier for adults with kidney disease and their clinicians.Nature reviews. Nephrology · 2024Article
- The trajectory of prognostic cognition in patients with advanced cancer: is the traditional advance care planning approach desirable for patients?Japanese journal of clinical oncology · 2024Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
1 author at 1 institution in 1 country.
Funding
Abstract
The merits and effectiveness of advance care planning (ACP) continue to be debated a full 30 years after the passage of the Patient Self-Determination Act. This act gave patients the right to create advance directives, with the objective of ensuring that the care they received at the end of life was consistent with their preferences and goals. ACP has definitively moved beyond the completion of advance directives to encompass the identification of a healthcare agent and the facilitation of communication among patients, surrogates, and clinicians. Nonetheless, the provision of goal-concordant care remains a primary objective for ACP. This article argues that this cannot and should not be the objective for ACP. Patients' goals change, and the provision of goal-concordant care is sometimes incompatible with other critical determinants of appropriate care. Instead, ACP should focus on the objective of improving caregiver outcomes. Surrogate decision-making by caregivers is associated with an elevated risk of post-traumatic stress disorder and other adverse outcomes, and these outcomes can be improved with ACP. ACP focused on caregivers involves helping caregivers to understand how they can help to shape the final chapter in a patient's life story, preventing caregivers from making promises they cannot keep, and preparing them to use all relevant information at the time decisions need to be made.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.