Evidence map›Paper›PMID 35973447›Full record

ArticleThe Journal of pediatrics2023

Group Concept Mapping Conceptualizes High-Quality Care for Long-Stay Pediatric Intensive Care Unit Patients and Families.

Brian D Leland, Lucia D Wocial, Vanessa N Madrigal, Michelle M Moon, Cheryl Ramey-Hunt, Jennifer K Walter, Jennifer D Baird, Jeffrey D Edwards

Abstract read
In one paragraph

Article in The Journal of pediatrics, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Addressing neonatal intensive care unit clinicians' distress via interprofessional meetings.Journal of perinatology : official journal of the California Perinatal Association · 2026
    Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Brian D LelandDivision of Pediatric Critical Care, Department of Pediatrics, Indiana University School of Medicine, Indianapolis, IN; Charles Warren Fairbanks Center for Medical Ethics, Indianapolis, IN. Electronic address: Brleland@iupui.edu.
Lucia D WocialJohn J. Lynch, MD Center for Ethics, MedStar Washington Hospital Center, Washington, DC.
Vanessa N MadrigalDivision of Critical Care Medicine, Department of Pediatrics, George Washington University School of Medicine and Health Sciences, Washington, DC; Pediatric Ethics Program, Children's National Hospital, Washington, DC.
Michelle M MoonPalliative Care and Symptom Management, Swedish Health Systems, Issaquah, WA.
Cheryl Ramey-HuntIntegrated Care Management, Case Management, and Social Work, Indiana University Health & Riley Hospital for Children, Indianapolis, IN.
Jennifer K WalterDepartment of Pediatrics, University of Pennsylvania Perelman School of Medicine, Philadelphia, PA; Department of Medical Ethics and Health Policy, University of Pennsylvania Perelman School of Medicine, Philadelphia, PA; Pediatric Advanced Care Team, Justin Michael Ingerman Center for Palliative Care, The Children's Hospital of Philadelphia, Philadelphia, PA; Center for Pediatric Clinical Effectiveness, The Children's Hospital of Philadelphia, Philadelphia, PA.
Jennifer D BairdInstitute for Nursing and Interprofessional Research, Children's Hospital Los Angeles, CA.
Jeffrey D EdwardsSection of Critical Care, Department of Pediatrics, Columbia University Vagelos College of Physician and Surgeons, New York, NY.

Funding

Supplement to Improving Family Meetings in the Pediatric CICUK23HL141700 · NHLBI · CHILDREN'S HOSP OF PHILADELPHIA · PI WALTER, JENNIFER K · 2019 to 2023
$981k
NHLBI NIH HHS K23 HL141700
6 · The paper itself

Abstract

objectiveTo describe and conceptualize high-quality care for long-stay pediatric intensive care unit (PICU) patients using group concept mapping (GCM). STUDY

designWe convened an expert panel to elucidate domains of high-quality care for this growing patient population for which transitory care models fail to meet their needs. Thirty-one healthcare professionals and 7 parents of patients with previous prolonged PICU hospitalizations comprised a diverse, interprofessional multidisciplinary panel. Participants completed the prompt "For PICU patients and families experiencing prolonged lengths of stay, high quality care from the medical team includes ______", with unlimited free text responses. Responses were synthesized into individual statements, then panelists sorted them by idea similarity and rated them by perceived importance. Statement analysis using GCM software through GroupWisdom generated nonoverlapping clusters representing domains of high-quality care.

resultsParticipants submitted 265 prompt responses representing 313 unique ideas, resulting in 78 final statements for sorting and rating. The resultant cluster map best representing the data contained 8 domains: (1) Family-Centered Care and Shared Decision Making, (2) Humanizing the Patient, (3) Clinician Supports and Resources, (4) Multidisciplinary Coordination of Care, (5) Family Well-Being, (6) Anticipatory Guidance and Care Planning, (7) Communication, and (8) Continuity of Care.

conclusionsGCM empowered a panel of healthcare professionals and parents to explicitly describe and conceptualize high-quality care for patients and families experiencing prolonged PICU stays. This information will aid the effort to address shortcomings of transitory PICU care models.

Indexed as

CommunicationIntensive Care Units, PediatricChildHealth PersonnelHumansParentsQuality of Health Carecontinuity of patient carecritical carecritical care outcomeslength of staypediatrics

Identifiers

PMID35973447
PMCPMC9772094

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.