ArticleJournal of the American Medical Informatics Association : JAMIA2022
Engaging the disability community in informatics research: rationales and practical steps.
Article in Journal of the American Medical Informatics Association : JAMIA, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
11 citing papers in PubMed, 18 citations in OpenAlex.
- Inclusive Digital Health Strategies for Persons With Disabilities: A Scoping Review.JAMA network open · 2026Article
- Moving beyond the benchmarks: Five foundational principles for meaningful AI evaluation in healthcare.PLOS digital health · 2026Article
- Contextualizing key principles to promote a justice-oriented informatics research agenda: proceedings and reflections from an American Medical Informatics Association workshop.Journal of the American Medical Informatics Association : JAMIA · 2026Article
- A Call for Integrated Approaches in Digital Technology Design for Aging and Disability.The Gerontologist · 2025Review
- The role of patient ergonomics in improving health research participation.Applied ergonomics · 2025Review
- Investigating the Best Practices for Engagement in Remote Participatory Design: Mixed Methods Analysis of 4 Remote Studies With Family Caregivers.Journal of medical Internet research · 2024Article
- Designing an infographic webtool for public health.Journal of the American Medical Informatics Association : JAMIA · 2024Article
- From Chronic Health Condition to Disability Identity: Opportunities for Health Informatics Engagement.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2024Article
- Characterization of Adult Patients with Autism Spectrum Disorder that Use Patient Portal.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2023Article
- Designing mobile health to align with the social determinants of health.Frontiers in digital health · 2023Article
- Meeting the information and communication needs of health disparate populations.Journal of the American Medical Informatics Association : JAMIA · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
11 authors at 6 institutions in 1 country.
Funding
Abstract
As the informatics community grows in its ability to address health disparities, there is an opportunity to expand our impact by focusing on the disability community as a health disparity population. Although informaticians have primarily catered design efforts to one disability at a time, digital health technologies can be enhanced by approaching disability from a more holistic framework, simultaneously accounting for multiple forms of disability and the ways disability intersects with other forms of identity. The urgency of moving toward this more holistic approach is grounded in ethical, legal, and design-related rationales. Shaped by our research and advocacy with the disability community, we offer a set of guidelines for effective engagement. We argue that such engagement is critical to creating digital health technologies which more fully meet the needs of all disabled individuals.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.