Evidence map›Paper›PMID 35960005›Full record

ArticleJournal of family nursing2022

Extended Family Caregivers for Persons Living With Dementia.

Karen A Roberto, Jyoti Savla

Abstract read
In one paragraph

Article in Journal of family nursing, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

9 citing papers in PubMed.

  1. Article
  2. Caregiver social networks and discontinued support during COVID-19: a multilevel dyadic analysis.The journals of gerontology. Series B, Psychological sciences and social sciences · 2026
    Article
  3. Article
  4. Article
  5. Article
  6. Kinship and Care: Racial Disparities in Potential Dementia Caregiving in the United States From 2000 to 2060.The journals of gerontology. Series A, Biological sciences and medical sciences · 2024
    Article
  7. Article
  8. Traditional and Non-traditional Caregivers Define "Family" and Caregiving Obligations.American journal of Alzheimer's disease and other dementias
    Article
  9. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

2 authors.

Karen A RobertoVirginia Tech, Blacksburg, USA.ORCID 0000-0003-1153-1811
Jyoti SavlaVirginia Tech, Blacksburg, USA.ORCID 0000-0001-7142-3770

Funding

Persons with Dementia and their Extended Family Caregivers: Service Use, Barriers and NeedsR01AG069818 · NIA · VIRGINIA POLYTECHNIC INST AND ST UNIV · PI ROBERTO, KAREN A, SAVLA, JYOTI S · 2020 to 2024
$2.1M
Families in Appalachia Caring for Elders with Alzheimer's Disease (FACES-AD)R21AG054682 · NIA · VIRGINIA POLYTECHNIC INST AND ST UNIV · PI ROBERTO, KAREN A, SAVLA, JYOTI S · 2017 to 2018
$418k
NIA NIH HHS R01 AG069818NIA NIH HHS R21 AG054682
6 · The paper itself

Abstract

Despite changes in the structure of contemporary families, little is known about extended family members-siblings, grandchildren, nieces/nephews, stepkin-who are primary caregivers for a relative living with dementia. Information about these caregivers is needed to help ensure their needs are understood by providers in health care and social service settings. The focus of this research was on the care situations of extended family caregivers and the impact of caregiving on their health and well-being. In Study 1, data from the National Study of Caregiving were used to describe the experiences of 107 extended family caregivers. In Study 2, case study techniques elicited additional information about the experiences of 10 extended family caregivers. Collectively, these caregivers provide care with little or no formal support and occasional help from a small informal network. Caregiving affected their physical and emotional health, depending on the strength of the relationship between the caregiver and the person living with dementia and the type of care provided. Findings contribute new knowledge about extended family caregivers and highlight the important role extended family dementia caregivers play and the challenges they face.

Indexed as

CaregiversDementiaFamilyHumansAlzheimer’s diseaseburdenhome-care servicesother caregivers

Identifiers

PMID35960005
PMCPMC10112257

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.