ArticleInternational journal of environmental research and public health2022
"What Do You Need? What Are You Experiencing?" Relationship Building and Power Dynamics in Participatory Research Projects: Critical Self-Reflections of Researchers.
Article in International journal of environmental research and public health, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 1 of them a synthesis that pooled it.
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Who cites it
13 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Key Components and Barriers in Web-Based Suicide Prevention Gatekeeper Training: Systematic Narrative Review.Journal of medical Internet research · 2026Pooled it
- Cultivating Authentic Partnership: Cooperative Development of a Toolkit to Mitigate Group Harm in Biorepository-Enabled Research.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Design Justice in Action: Co-Developing an HIV and Substance Use Linkage Intervention with Young Adults Involved in the Carceral System.Social sciences (Basel, Switzerland) · 2026Article
- Clinical mental health supervision in a humanitarian context in LMICs: PEACE model for community engagement.Research involvement and engagement · 2025Article
- Using photovoice to define "community" in substance use disorder research engaging service users, providers, and policymakers.SSM. Qualitative research in health · 2025Article
- A Right to Know? Using Access to Information as Method in Critical Criminological Research.Qualitative inquiry : QI · 2025Article
- Challenges and Facilitators to Patient and Public Involvement In Stroke Research: Protocol for a Qualitative Study.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Enhancing patients' role in scientific writing: insights from a global participatory approach with people with multiple sclerosis.Research involvement and engagement · 2025Article
- Article
- Stroke patient and stakeholder engagement (SPSE): concepts, definitions, models, implementation strategies, indicators, and frameworks-a systematic scoping review.Systematic reviews · 2024Article
- Inclusion-light or innovation of inclusion: modes of innovation and exnovation for the German vocational rehabilitation and participation system.Frontiers in rehabilitation sciences · 2024Article
- Practices of Care in Participatory Design With Older Adults During the COVID-19 Pandemic: Digitally Mediated Study.Journal of medical Internet research · 2023Article
- "Back into Life-With a Power Wheelchair": Learning from People with Severe Stroke through a Participatory Photovoice Study in a Metropolitan Area in Germany.International journal of environmental research and public health · 2022Article
Corrections and comments
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Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Participatory approaches create opportunities for cooperation, building relationships, gaining knowledge, rethinking, and eventually changing power structures. From an international perspective, the article looks at the historical development of different participatory approaches in which building relationships and managing the balance of power between persons engaged in participatory research are central. The authors present and critically reflect on four research projects to show how they understood and implemented participatory research in different ways and what they have learned from their respective experiences. The "PaSuMi" project worked in the context of addiction prevention with migrants and provides a glimpse into different contexts of participatory research. The initiator of the study "Back into life-with a power wheelchair" works with post-stroke individuals who use the assistive device in community mobility and reflects on the shifting and intertwining roles of participants. In the research project "Workshops for implementation of expanded community nursing", new professional roles for nurses in community nursing were developed; here limitations to participation and ways to deal with them are illustrated. Finally, the "DIPEx" project deals with challenges of enabling participation of persons with multiple sclerosis via narrative interviews on the experience of health and illness. All examples underline the necessity of a permanent reflection on relationships and power dynamics in participatory research processes.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.