ArticleJournal of autism and developmental disorders2023
Mapping the Dilemmas Parents Face with Disclosing Autism Diagnosis to their Child.
Article in Journal of autism and developmental disorders, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers, 1 of them a synthesis that pooled it.
What it found
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The trial behind it
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Who cites it
4 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Identifying autistic children: Priorities for research arising from a systematic review of parents' experiences of the assessment process.Autism : the international journal of research and practice · 2024Pooled it
- Defining diagnostic disclosure in the acute care setting: A concept analysis.International journal of nursing studies · 2026Review
- Talking About Autism Within the Family: Parents' Perspectives and Their Influence on Self-Efficacy.Journal of autism and developmental disorders · 2025Article
- Article
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The diagnosis of autism is often delivered solely to the parents, a practice that forces them to confront the dilemma of whether, when and how they should disclose it to the child. The present study seeks to probe deeper into the phenomenon of diagnosis disclosure and lead to a clearer understanding of the dilemmas parents? face. This article presents an analysis of a focus group and an online survey conducted with parents. The analysis produced a model that maps parents' dilemmas regarding diagnosis disclosure to their child. The dilemmas, found to be complex and interconnected, concern the invisible nature of autism, the word autism and stigma, time motif, child's environment, the act of disclosure itself, and the child's personal narrative.
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Registered trials
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