Evidence map›Paper›PMID 35947493›Full record

ArticleChild: care, health and development2023

Experiences of medical traumatic stress in parents of children with medical complexity.

Tammie Dewan, Katie Birnie, Julie Drury, Isabel Jordan, Megan Miller, Alexandra Neville, Melanie Noel, Alam Randhawa, Anna Zadunayski, Jennifer Zwicker

Abstract read
In one paragraph

Article in Child: care, health and development, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
21citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

21 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Family Caregivers' Experiences of Services for Children With Medical Complexity: A Systematic Review and Qualitative Evidence Synthesis.Health expectations : an international journal of public participation in health care and health policy · 2025
    Pooled it
  2. Pooled it
  3. Article
  4. Article
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  6. The health and well-being of children with medical complexity and their parents' when admitted to inpatient care units: A scoping review.Journal of child health care : for professionals working with children in the hospital and community · 2026
    Article
  7. Article
  8. A Compassion-Focused Approach to Support Parents After Preterm Birth.Clinical child and family psychology review · 2025
    Review
  9. Article
  10. Emotional impact, burnout, and isolation among primary family caregivers of children with medical complexity.Families, systems & health : the journal of collaborative family healthcare · 2025
    Article
  11. Article
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  14. Children With Severe Neurologic Impairment and Their Families in the PICU: A Secondary Qualitative Analysis to Assess Clinician-Family Collaboration and Mutuality.Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies · 2025
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Tammie DewanDepartment of Pediatrics, University of Calgary, Calgary, Canada.ORCID 0000-0002-2089-7738
Katie BirnieDepartment of Anesthesia and Pain Medicine, University of Calgary, Calgary, Canada.
Julie Drury
Isabel Jordan
Megan MillerRotary Flames Children's Hospice and Palliative Care Service, Calgary, Canada.
Alexandra NevilleDepartment of Psychology, University of Calgary, Calgary, Canada.
Melanie NoelDepartment of Psychology, University of Calgary, Calgary, Canada.
Alam RandhawaDepartment of Pediatrics, University of Calgary, Calgary, Canada.
Anna ZadunayskiDepartment of Pediatrics, University of Calgary, Calgary, Canada.
Jennifer ZwickerSchool of Public Policy, University of Calgary, Calgary, Canada.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

BACKGROUND AND

objectivesParents of children with medical complexity (CMC) experience high levels of stress and adverse mental health outcomes. Pediatric medical traumatic stress (PMTS) could be an important contributor that has not yet been explored. PMTS describes parents' reactions to their child's illness and medical treatment and can lead to post-traumatic stress symptoms. This is the first study to describe the experiences and impact of PMTS among parents of CMC.

methodsWe conducted semi-structured interviews with 22 parents of CMC. Reflexive thematic analysis was used to generate themes that described the experiences of PMTS and potential contributing factors in the healthcare setting. Themes were validated by study participants.

resultsParents experienced a spectrum of events and circumstances that impacted PMTS. These corresponded to three major themes: (a) the distinctive context of being the parent of a CMC, (b) interactions with healthcare providers that can hurt or heal and (c) system factors that set the stage for trauma. The consequences of repeated PMTS were a common point of emphasis among all the themes. Parents identified numerous changes that could mitigate PMTS such as acknowledgement of trauma and provision of proactive mental health support.

conclusionsOur study highlights the issue of PMTS among parents of CMC and presents opportunities to mitigate their traumatic experiences. Supporting the integration of trauma-informed care practices, increasing awareness of PMTS and advocating for parental mental health services could better support parents and families.

Indexed as

Health PersonnelParentsChildHumansMental Healthchildren with medical complexitycomplex, chronic conditionsmedical traumatic stressparentpost-traumatic stresstraumatrauma-informed care

Identifiers

PMID35947493
PMCPMC10087969

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.