Evidence map›Paper›PMID 35941653›Full record

ArticleBMC health services research2022

Access to health care perceived by parents caring for their child at home supported by eHealth-a directed approach introducing aperture.

Mia Hylén, Stefan Nilsson, Inger Kristensson-Hallström, Gudrún Kristjánsdóttir, Pernilla Stenström, Rúnar Vilhjálmsson

Registry-linked trialOpen access · goldAbstract read
In one paragraph

Article in BMC health services research, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04150120 (eHealth as an Aid for Facilitating and Supporting Self-management in Families With Long-term Childhood Illness - Development, Evaluation and Implementation in Clinical Practice), which is not on this map. Cited by 8 papers.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed
5.6field-weighted citation impact, top 4% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT04150120 nacompletednot on this map

eHealth as an Aid for Facilitating and Supporting Self-management in Families With Long-term Childhood Illness - Development, Evaluation and Implementation in Clinical Practice

TypeinterventionalSponsorLund UniversityRan2019 to 2025Enrolled720ConditionsPreterm Birth, Pediatric Cancer, Hirschsprung Disease, Congenital MalformationArmse-health device with application, Mobile phone text messaging, early detection of cerebral palsy using a mobile phone application, Self-care for children with intravenous treatment at home
3 · Its place in the literature

Who cites it

8 citing papers in PubMed, 20 citations in OpenAlex.

  1. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 4 institutions in 2 countries.

Mia HylénDepartment of Intensive and Perioperative Care, Skane University Hospital, Malmo and Lund, Sweden. mia.hylen@med.lu.se.
Stefan NilssonDepartment of Health Sciences, Faculty of Medicine, Lund University, Lund, Sweden.
Inger Kristensson-HallströmDepartment of Health Sciences, Faculty of Medicine, Lund University, Lund, Sweden.
Gudrún KristjánsdóttirDepartment of Health Sciences, Faculty of Medicine, Lund University, Lund, Sweden.
Pernilla StenströmDepartment of Pediatric Surgery, Skåne University Hospital, Lund, Sweden.
Rúnar VilhjálmssonDepartment of Health Sciences, Faculty of Medicine, Lund University, Lund, Sweden.
Lund University · SESkåne University Hospital · SEUniversity of Gothenburg · SEUniversity of Iceland · IS

Funding

Forskningsrådet om Hälsa, Arbetsliv och Välfärd 2018-01399
6 · The paper itself

Abstract

backgroundIn recent years a variety of eHealth solutions has been introduced to enhance efficiency and to empower patients, leading to a more accessible and equitable health care system. Within pediatric care eHealth has been advocated to reduce emergency and hospital outpatient visits, with many parents preferring eHealth to physical visits following the transition from hospital to home. Still, not many studies have focused on access from the parental perspective. Therefore, the aim of the study was to analyze access to health care as perceived by parents when caring for their child at home, with conventional care supported by eHealth following pediatric surgery or preterm birth.

methodsTwenty-five parents who went home with their child following hospitalization and received conventional care supported by eHealth (a tablet) were interviewed in this qualitative study. Directed content analysis was used, guided by a framework for dimensions of access previously described as: approachability, acceptability, affordability, appropriateness, and availability.

resultsAll dimensions of access were present in the material with the dimensions of approachability, appropriateness and acceptability most frequently emphasized. The dimensions highlighted a strong acceptance of eHealth, which was perceived by the parents as beneficial, particularly access to communication with health care personnel familiar to them. The chat function of the tablet was often mentioned as positive. A new dimension was also identified: "aperture." It is defined by the pathways by which communication is transmitted in cyberspace, and these pathways are not easily visualized for parents submitting information, therefore generating concerns.

conclusionsParents generally experienced good access to the eHealth-supported health care. Describing access through its dimensions complemented previous descriptions of eHealth in pediatric care and gave new insights. As such, the new dimension of "aperture", the indeterminate opening of pathways of communication reflecting the uncertainty of not comprehending cyberspace, could be further evaluated. The dimensional framework of access is recommended when evaluating eHealth in the future.

trial registrationClinicalTrials.gov identifier: NCT04150120.

Indexed as

Health Services AccessibilityPremature BirthTelemedicineChildFemaleHumansInfant, NewbornParentsQualitative ResearchAccesseHealthHealth careNeonatalPediatric careSurgery

Identifiers

PMID35941653
PMCPMC9358091
OpenAlexW4290565779

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.