Evidence map›Paper›PMID 35940681›Full record

ArticleJournal of the American Medical Directors Association2022

Emergency Department Communication in Persons Living With Dementia and Care Partners: A Scoping Review.

Christopher R Carpenter, Jesseca Leggett, Fernanda Bellolio, Marian Betz, Ryan M Carnahan, David Carr, Michelle Doering, Jennie Chin Hansen, Eric D Isaacs, Deborah Jobe and 10 more

Open access · bronzeAbstract readScoping Review
In one paragraph

Article in Journal of the American Medical Directors Association, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 42 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
42citing papers in PubMed, 2 pooled it
8.2field-weighted citation impact, top 2% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

42 citing papers in PubMed, 2 syntheses or guidelines pooled it, 43 citations in OpenAlex.

  1. A systematic review of interventions for persons living with dementia: The Geriatric ED Guidelines 2.0.Academic emergency medicine : official journal of the Society for Academic Emergency Medicine · 2026
    Pooled it
  2. Discharge instruction comprehension by older adults in the emergency department: A systematic review and meta-analysis.Academic emergency medicine : official journal of the Society for Academic Emergency Medicine · 2024
    Pooled it
  3. Article
  4. Ambulatory Care Follow-Up and Fragmentation After Emergency Department Visits Among Older Adults.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2026
    Article
  5. Article
  6. A Team Approach to Patient-Centered Communication in the Emergency Department.Academic emergency medicine : official journal of the Society for Academic Emergency Medicine · 2026
    Article
  7. Article
  8. Article
  9. Article
  10. Communicating Across Languages: Experiences of Spanish-Speaking People With Dementia and Care Partners in the Emergency Department.Academic emergency medicine : official journal of the Society for Academic Emergency Medicine · 2026
    Article
  11. Article
  12. Development and validation of the Patient-Reported Outcome Measure-Older adult care Transitions from the Emergency Department (PROM-OTED) tool.Academic emergency medicine : official journal of the Society for Academic Emergency Medicine · 2026
    Article
  13. Article
  14. Article
  15. Article
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  18. Article
  19. Article
  20. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

20 authors at 12 institutions in 1 country.

Christopher R CarpenterDepartment of Emergency Medicine, Washington University in St. Louis School of Medicine, Emergency Care Research Core, St. Louis, MO, USA. Electronic address: carpenterc@wustl.edu.
Jesseca LeggettDepartment of Emergency Medicine, Washington University in St. Louis School of Medicine, Emergency Care Research Core, St. Louis, MO, USA.
Fernanda BellolioDepartment of Emergency Medicine, Mayo Clinic, Rochester, MN, USA.
Marian BetzDepartment of Emergency Medicine, University of Colorado Anschutz Medical Campus, VA Eastern Colorado Geriatric Research Education and Clinical Center, Denver, CO, USA.
Ryan M CarnahanDepartment of Epidemiology, The University of Iowa College of Public Health, Iowa City, IA, USA.
David CarrDepartment of Medicine and Neurology, Washington University in St. Louis School of Medicine, St. Louis, MO, USA.
Michelle DoeringBecker Medical Library, Washington University in St. Louis School of Medicine, St. Louis, MO, USA.
Jennie Chin HansenSCAN Health Plan, Long Beach, CA, USA.
Eric D IsaacsDepartment of Emergency Medicine, University of California, San Francisco, San Francisco, CA, USA.
Deborah JobePerson Living with Dementia, 2021-2022 Alzheimer's Association National Early Stage Advisory Group, St. Louis MO, USA.
Kathleen KellyFamily Caregiver Alliance, San Francisco, CA, USA.
Nancy Morrow-HowellBrown School of Social Work, Washington University in St. Louis, St. Louis, MO, USA.
Beth PrusaczykDepartment of Medicine, Institute for Informatics, Washington University School of Medicine in St. Louis, St. Louis, MO, USA.
Bob SavagePerson Living with Dementia, LiveWell Alliance, Plantsville, CT, USA.
Joe SuyamaDepartment of Emergency Medicine, University of Pittsburgh Medical Center, Pittsburgh, PA, USA.
Allan S VannCare Partner Stakeholder, Commack, NY, USA.
Kristin L RisingDepartment of Emergency Medicine, Thomas Jefferson University, Philadelphia, PA, USA.
Ula HwangDepartment of Emergency Medicine, Yale University, New Haven, CT, USA.
Manish N ShahBerbeeWalsh Department of Emergency Medicine, University of Wisconsin-Madison, Madison, WI, USA.
GEAR 2.0-ADC Network
Washington University in St. Louis · USDean Health Plan · USDigital Research Alliance of CanadaAlzheimer's Association · USGeriatric Research Education and Clinical Center · USMayo Clinic in Arizona · USThomas Jefferson University · USUniversity of California, San Francisco · USUniversity of Iowa · USUniversity of Pittsburgh Medical Center · USUniversity of Wisconsin–Madison · USYale University · US

Funding

Geriatrics Emergency care Applied Research Network 2.1 - AdvanCing and Expanding Dementia care (GEAR 2.1 - ACED)R33AG069822 · NIA · YALE UNIVERSITY · PI Ula Y Hwang, MANISH N SHAH · 2023 to 2026
$5.3M
Growing the Geriatric Emergency care Applied Research (GEAR 1.1) network: Expanding and sustaining an emergency care aging study infrastructure.R33AG058926 · NIA · YALE UNIVERSITY · PI Ula Y Hwang, Daniella Meeker · 2020 to 2026
$4.6M
Geriatric Emergency care Applied Research network 2.0 - Advancing Dementia Care (GEAR 2.0 ADC)R61AG069822 · NIA · YALE UNIVERSITY · PI HWANG, ULA Y, SHAH, MANISH N · 2020 to 2021
$3.0M
GAPcare II: The Geriatric Acute & Post-acute Care Coordination Program for Fall Prevention in the Emergency DepartmentK76AG059983 · NIA · UNIVERSITY OF COLORADO DENVER · PI GOLDBERG, ELIZABETH · 2019 to 2024
$1.5M
Building the Geriatric Emergency care Applied Research (GEAR) networkR21AG058926 · NIA · ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI · PI HWANG, ULA Y · 2018 to 2019
$463k
NIA NIH HHS K76 AG059983NIA NIH HHS R21 AG058926NIA NIH HHS R33 AG058926NIA NIH HHS R33 AG069822NIA NIH HHS R61 AG069822
6 · The paper itself

Abstract

objectivesTo synthesize published research exploring emergency department (ED) communication strategies and decision-making with persons living with dementia (PLWD) and their care partners as the basis for a multistakeholder consensus conference to prioritize future research.

designSystematic scoping review. SETTINGS AND

participantsPLWD and their care partners in the ED setting.

methodsInformed by 2 Patient-Intervention-Comparison-Outcome (PICO) questions, we conducted systematic electronic searches of medical research databases for relevant publications following standardized methodological guidelines. The results were presented to interdisciplinary stakeholders, including dementia researchers, clinicians, PLWD, care partners, and advocacy organizations. The PICO questions included: How does communication differ for PLWD compared with persons without dementia? Are there specific communication strategies that improve the outcomes of ED care? Future research areas were prioritized.

resultsFrom 5451 studies identified for PICO-1, 21 were abstracted. From 2687 studies identified for PICO-2, 3 were abstracted. None of the included studies directly evaluated communication differences between PLWD and other populations, nor the effectiveness of specific communication strategies. General themes emerging from the scoping review included perceptions by PLWD/care partners of rushed ED communication, often exacerbated by inconsistent messages between providers. Care partners consistently reported limited engagement in medical decision-making. In order, the research priorities identified included: (1) Barriers/facilitators of effective communication; (2) valid outcome measures of effective communication; (3) best practices for care partner engagement; (4) defining how individual-, provider-, and system-level factors influence communication; and (5) understanding how each member of ED team can ensure high-quality communication. CONCLUSIONS AND IMPLICATIONS: Research exploring ED communication with PLWD is sparse and does not directly evaluate specific communication strategies. Defining barriers and facilitators of effective communication was the highest-ranked research priority, followed by validating outcome measures associated with improved information exchange.

Indexed as

CaregiversDementiaCommunicationEmergency Service, HospitalHumansSelf Carecommunicationdecision makingDementiaemergency medicinepatient participation

Identifiers

PMID35940681
PMCPMC10802113
OpenAlexW4289877184

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.