Evidence map›Paper›PMID 35938017›Full record

ArticleFrontiers in genetics2022

Community input in a genomic health implementation program: Perspectives of a community advisory group.

Miranda E Vidgen, Katrina Cutler, Jessica Bean, David Bunker, Lindsay F Fowles, Louise Healy, Gary Hondow, Satrio Nindyo Istiko, Aideen M McInerney-Leo, Gregory Pratt and 3 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Frontiers in genetics, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Miranda E VidgenQIMR Berghofer Medical Research Institute, Herston, QLD, Australia.
Katrina CutlerQueensland Genomics, Herston, QLD, Australia.
Jessica BeanQueensland Genomics Community Advisory Group, Brisbane, QLD, Australia.
David BunkerQueensland Genomics, Herston, QLD, Australia.
Lindsay F FowlesQueensland Genomics Community Advisory Group, Brisbane, QLD, Australia.
Louise HealyQueensland Genomics Community Advisory Group, Brisbane, QLD, Australia.
Gary HondowQueensland Genomics Community Advisory Group, Brisbane, QLD, Australia.
Satrio Nindyo IstikoQueensland Genomics Community Advisory Group, Brisbane, QLD, Australia.
Aideen M McInerney-LeoQueensland Genomics Community Advisory Group, Brisbane, QLD, Australia.
Gregory PrattQIMR Berghofer Medical Research Institute, Herston, QLD, Australia.
Deborah RobinsQueensland Genomics Community Advisory Group, Brisbane, QLD, Australia.
Nicola WaddellQIMR Berghofer Medical Research Institute, Herston, QLD, Australia.
Erin EvansQueensland Genomics Community Advisory Group, Brisbane, QLD, Australia.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Consumer and community engagement (CCE) in the implementation of genomics into health services and associated research is needed to ensure that changes benefit the affected patients. Queensland Genomics was a program to implement genomics into a public health service. We describe its Community Advisory Group's (CAG) structure and function and provide recommendations based on the CAG members' perspectives. The CAG provided advice to the Queensland Genomics program and its projects in an advisory capacity. The CAG was also resourced to develop and lead community-focused activities. Key enablers for CAG included; diversity of CAG members' skills and experience, adequate resourcing, and the CAG's ability to self-determine their direction. The CAG experienced limitations due to a lack of mechanisms to implement CCE in the Program's projects. Here, we provide insights and commentary on this CAG, which will be useful for other initiatives seeking to undertake CCE in genomic research and health care.

Indexed as

community advisory boardscommunity and consumer engagementcommunity and consumer involvementemerging technologiesgeneticsgenomichealth implementation sciencepublic participation

Identifiers

PMID35938017
PMCPMC9355292

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.