ArticleCell genomics2022
Three decades of ethical, legal, and social implications research: Looking back to chart a path forward.
Article in Cell genomics, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
20 citing papers in PubMed.
- Toward a framework for measuring the impact of ELSI research.Nature genetics · 2026Article
- Advocating for return-of-results to participants in microbiome research.Nature microbiology · 2026Article
- Addressing Ethical, Legal, and Social Issues on Artificial Intelligence Together With Patients' Perspectives: Prerequisites for Responsible Social Implementation in Endoscopy.Digestive endoscopy : official journal of the Japan Gastroenterological Endoscopy Society · 2026Article
- A guide to using embedded ethics in human stem-cell-based embryo model research.Nature cell biology · 2026Review
- Examining relationships between multifactorial health beliefs and beliefs about the social implications of genetics.Journal of health psychology · 2026Article
- Review
- Workplace perk or pitfall? A qualitative study of genetic counselors' perspectives and experiences with workplace genetic testing.Journal of genetic counseling · 2025Article
- The expanding global genomics landscape: Converging priorities from national genomics programs.American journal of human genetics · 2025Review
- On Minimizing Risk and Harm in the Use of Psychedelics.Psychiatric research and clinical practice · 2025Article
- Integrating mRNA vaccines into the attitudes toward genomics and precision medicine scale: A validation study with a sample of 4939 adults in the USA.Journal of clinical and translational science · 2025Article
- Embedded Ethics in Practice: A Toolbox for Integrating the Analysis of Ethical and Social Issues into Healthcare AI Research.Science and engineering ethics · 2024Article
- Review
- Integrating safety, security, sustainability, and social responsibility principles into the U.S. bioeconomy.mSphere · 2024Article
- Ethical, legal, and social implications of digital health: A needs assessment from the Society of Behavioral Medicine to inform capacity building for behavioral scientists.Translational behavioral medicine · 2024Article
- Perceptions and beliefs of community gatekeepers about genomic risk information in African cleft research.BMC public health · 2024Article
- The Human Genome Organisation (HUGO) and a vision for Ecogenomics: the Ecological Genome Project.Human genomics · 2023Review
- The Pitfalls of Genomic Data Diversity.The Hastings Center report · 2023Article
- The Impact of Transmissible Microbes: How the Cystic Fibrosis Community Mobilized Against Cepacia.Perspectives in biology and medicine · 2023Article
- Understanding the Gap: A Cross-Sectional Survey of ELSI Scholars' Dissemination Practices and Translation Goals.AJOB empirical bioethicsArticle
- "Ethical Responsibility Very Often Gets Drowned Out": A Qualitative Interview Study of Genome Scientists' and ELSI Scholars' Perspectives on the Role and Relevance of ELSI Expertise.AJOB empirical bioethicsArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
Abstract
More than thirty years ago in the United States, the National Center for Human Genome Research (NCHGR) at the National Institutes of Health (NIH) and its partner in the Human Genome Project (HGP), the Department of Energy (DOE), called for proposals from social scientists, ethicists, lawyers, and others to explore the ethical, legal, and social implications (ELSI) of mapping and sequencing the human genome. Today, nearly twenty years after the completion of the HGP, the ELSI Research Program of the National Human Genome Research Institute (NHGRI) continues this support. It has fostered the growth of ELSI research into a global field of study, uniquely positioned at the nexus of many academic disciplines and in proximity to basic and applied scientific research. We examine the formation of the first ELSI program and consider whether science policy in the public interest can exist within the confines of a set-aside from the NHGRI budget.
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.