Evidence map›Paper›PMID 35931965›Full record

ArticleBMC nephrology2022

Disparities in dialysis modality decision-making using a social-ecological lens: a qualitative approach.

Miriam Vélez-Bermúdez, Jenna L Adamowicz, Natoshia M Askelson, Susan K Lutgendorf, Mony Fraer, Alan J Christensen

Open access · goldAbstract read
In one paragraph

Article in BMC nephrology, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
1.9field-weighted citation impact, top 10% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 7 citations in OpenAlex.

  1. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 1 institution in 1 country.

Miriam Vélez-BermúdezDepartment of Psychological & Brain Sciences, University of Iowa, Iowa City, IA, USA. miriam-velez-bermudez@uiowa.edu.
Jenna L AdamowiczDepartment of Psychological & Brain Sciences, University of Iowa, Iowa City, IA, USA.
Natoshia M AskelsonDepartment of Community and Behavioral Health, University of Iowa, Iowa City, IA, USA.
Susan K LutgendorfDepartment of Psychological & Brain Sciences, University of Iowa, Iowa City, IA, USA.
Mony FraerDepartment of Internal Medicine, University of Iowa, Iowa City, IA, USA.
Alan J ChristensenDepartment of Psychological & Brain Sciences, University of Iowa, Iowa City, IA, USA.
University of Iowa · US

Funding

Mechanisms of Health and Disease at the Behavioral-Biomedical InterfaceT32GM108540 · NIGMS · UNIVERSITY OF IOWA · PI LUTGENDORF, SUSAN K, VOSS, MICHELLE WEBB · 2014 to 2023
$1.7M
Dialysis Modality Decision Making in Adults with ESRDF31DK124997 · NIDDK · UNIVERSITY OF IOWA · PI VELEZ-BERMUDEZ, MIRIAM · 2020 to 2021
$79k
NIDDK NIH HHS F31 DK124997NIGMS NIH HHS T32 GM108540
6 · The paper itself

Abstract

backgroundPatients with end-stage kidney disease (ESKD) may choose to undergo dialysis in-center or at home, but uptake of home dialysis in the US has been minimal despite its benefits over in-center dialysis. Factors that may have led patients to select home dialysis over in-center dialysis are poorly understood in the literature, and interventions to improve selection of home dialysis have focused on patient knowledge and shared decision-making processes between patients and providers. The purpose of this study was to explore micro- and macro-level factors surrounding dialysis modality decision-making among patients undergoing in-center and home dialysis, and explore what leads patients to select home dialysis over in-center dialysis.

methodsSemi-structured qualitative interviews were conducted in a dialysis clinic at a large Midwestern research hospital, from September 2019 to December 2020. Participants were 18 years or older, undergoing dialysis for ESKD, and had the cognitive ability to provide consent. Surveys assessing demographic and clinical information were administered to participants following their interviews.

resultsForty patients completed interviews and surveys (20 [50%] in-center dialysis, 17 [43%] female, mean [SD] age, 59 [15.99] years). Qualitative findings suggested that healthcare access and engagement before entering nephrology care, after entering nephrology care, and following dialysis initiation influenced patients' awareness regarding their kidney disease status, progression toward ESKD, and dialysis options. Potential modifiers of these outcomes include race, ethnicity, and language barriers. Most participants adopted a passive-approach during decision-making. Finally, fatigue, concerns regarding one's dialyzing schedule, and problems with fistula/catheter access sites contributed to overall satisfaction with one's dialysis modality.

conclusionsFindings point to broader factors affecting dialysis selection, including healthcare access and racial/ethnic inequities. Providing dialysis information before entering nephrology and after dialysis initiation may improve patient agency in decision-making. Additional resources should be prioritized for patients of underrepresented backgrounds. Dialysis decision-making may be appropriately modeled under the social-ecological framework to inform future interventions.

Indexed as

Kidney Failure, ChronicNephrologyDecision MakingFemaleHemodialysis, HomeHumansMaleMiddle AgedQualitative ResearchRenal DialysisSurveys and QuestionnairesDecision-makingDialysisHealthcare disparitiesQualitative methods

Identifiers

PMID35931965
PMCPMC9356453
OpenAlexW4290080905

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.