Evidence map›Paper›PMID 35927976›Full record

ArticleJournal of evaluation in clinical practice2023

Parents' experiences of handling oral anticancer drugs at home: 'It all falls on me …'.

Ranaa Akkawi El Edelbi, Staffan Eksborg, Ulrika Kreicbergs, Malin Lövgren, Klara Wallén, Jennie Ekman, Synnöve Lindemalm

Open access · hybridAbstract read
In one paragraph

Article in Journal of evaluation in clinical practice, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed, 1 pooled it
2.3field-weighted citation impact, top 12% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 1 synthesis or guideline pooled it, 7 citations in OpenAlex.

  1. Pooled it
  2. Article
  3. Article
  4. Article
  5. Article
  6. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 2 institutions in 1 country.

Ranaa Akkawi El EdelbiDepartment of Women's and Children's Health, Childhood Cancer Research Unit, Karolinska Institutet, Stockholm, Sweden.ORCID 0000-0002-3966-0351
Staffan EksborgDepartment of Women's and Children's Health, Childhood Cancer Research Unit, Karolinska Institutet, Stockholm, Sweden.
Ulrika KreicbergsDepartment of Women's and Children's Health, Childhood Cancer Research Unit, Karolinska Institutet, Stockholm, Sweden.
Malin LövgrenDepartment of Health Care Sciences, Palliative Research Centre, Ersta Sköndal Bräcke University College, Stockholm, Sweden.
Klara WallénDivision of Pediatrics, Karolinska University Hospital, Astrid Lindgren Children's Hospital, Stockholm, Sweden.
Jennie EkmanDivision of Pediatrics, Karolinska University Hospital, Astrid Lindgren Children's Hospital, Stockholm, Sweden.
Synnöve LindemalmDivision of Pediatrics, Karolinska University Hospital, Astrid Lindgren Children's Hospital, Stockholm, Sweden.
Karolinska University Hospital · SEKarolinska Institutet · SE

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

aimThe aim of this study was to describe the experiences of parents handling oral anticancer drugs in a home setting.

methodsParents of children with cancer were recruited from a paediatric oncology ward in Sweden to participate in an interview. The interviews were transcribed verbatim and subjected to qualitative content analysis.

resultsWe found the following categories and subcategories: parents' views on the provided information-lack of, too little or contradictory information, and parents' preferences for information delivery; safety over time; correct drug dose; and drug administration. As time passed, most parents adapted to their child's illness, felt safer and found it easier to take in and process any given information. Parents preferred information in different formats (written, movie clips and orally) and in their mother tongue. Many parents were aware of the importance of giving an accurate dose to their child and described the process of drug administration as overwhelming.

conclusionParents need to be provided with accurate, timely, nonconflicting and repeated information-in different forms and in their mother tongue-on how to handle oral anticancer drugs at home.

Indexed as

Antineoplastic AgentsNeoplasmsChildEmotionsHumansParentsQualitative ResearchSwedenAntineoplastic Agentsexperienceshandlinghomeoral anticancer drugsparents

Identifiers

PMID35927976
PMCPMC10086976
OpenAlexW4289889812

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.