Evidence map›Paper›PMID 35919731›Full record

ArticleDisability & society2021

Disability stories: personal perspectives of people with disabilities on navigating the U.S. health system.

Karen Colorafi, Laura Cupples, Davi Kallman, Jae Kennedy

Open access · greenAbstract read
In one paragraph

Article in Disability & society, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
0.2field-weighted citation impact, top 34% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed, 2 citations in OpenAlex.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors at 3 institutions in 1 country.

Karen ColorafiSchool of Nursing and Human Physiology, Gonzaga University, Spokane, WA, USA.ORCID 0000-0002-2606-2264
Laura CupplesSchool of Nursing and Human Physiology, Gonzaga University, Spokane, WA, USA.
Davi KallmanDisability Access Center, Washington State University, Pullman, WA, USA.
Jae KennedyElson S. Floyd College of Medicine, Elson S. Floyd College of Medicine.
Gonzaga University · USGeorgia Highlands College · USWashington State University · US

Funding

ACL HHS 90ARCP0001ACL HHS 90DP0075
6 · The paper itself

Abstract

Americans with disabilities and chronic illness or injury tend to be in poorer health, use more health services, and pay more for healthcare than those without disabilities. Consequently, their lives can be profoundly affected by federal and state health policies. The concerns of this population do not figure prominently in national health policy discourse and related public health and health services research efforts. This study sought to give voice to the lived experiences of people with disabilities as they navigate a fragmented U.S. healthcare system. We interviewed 30 adults who self-identified as having a disability and spoke or otherwise communicated in the English language. Directed content analysis was used to examine words and phrases in professionally transcribed documents by experienced qualitative researchers. We report and discuss four themes from the perspective of the participant, presented in thematic statements, related to vocation, finances, stressors, and advocacy.

Indexed as

Disabilityhealthcareinsurancepolicy

Identifiers

PMID35919731
PMCPMC9340786
OpenAlexW4200612515

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.