ArticleThe patient2022
Opportunities to Improve Long COVID Care: Implications from Semi-structured Interviews with Black Patients.
Article in The patient, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers.
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Who cites it
14 citing papers in PubMed.
- Article
- Detecting, Characterizing, and Mitigating Implicit and Explicit Racial Biases in Health Care Datasets With Subgroup Learnability: Algorithm Development and Validation Study.Journal of medical Internet research · 2025Article
- Self-reported Health Service Utilization and Barriers to Care Among US Adults with a History of Post COVID-19 Condition.Journal of general internal medicine · 2025Article
- Challenges in Receiving Care for Long COVID: A Qualitative Interview Study Among Primary Care Patients About Expectations and Experiences.Annals of family medicine · 2024Article
- "The dream is that there's one place you go": a qualitative study of women's experiences seeking care from Long COVID clinics in the USA.BMC medicine · 2024Article
- A Research Framework to Improve Health Disparity Evidence Gaps in Value Assessments.PharmacoEconomics · 2024Article
- Long COVID awareness and receipt of medical care: a survey among populations at risk for disparities.Frontiers in public health · 2024Article
- 'I'm still here, I'm alive and breathing': The experience of Black Americans with long COVID.Journal of clinical nursing · 2024Article
- Article
- Vaccine perceptions among Black adults with long COVID.Ethnicity & health · 2023Article
- Disabled people's experiences accessing healthcare services during the COVID-19 pandemic: a scoping review.BMC health services research · 2023Article
- LitCovid in 2022: an information resource for the COVID-19 literature.Nucleic acids research · 2023Article
- Long COVID in the context of social determinants of health.Frontiers in public health · 2023Article
- Ethnic and racial differences in self-reported symptoms, health status, activity level, and missed work at 3 and 6 months following SARS-CoV-2 infection.Frontiers in public health · 2023Article
Corrections and comments
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Authors and funding
11 authors.
Funding
Abstract
backgroundLong coronavirus disease (COVID) is an emerging condition that could considerably burden healthcare systems. Prior qualitative studies characterize the experience of having long COVID, which is valuable for informing care strategies. However, evidence comes from predominantly White samples. This is a concern because underrepresentation of Black patients in research and intervention development contribute to racial inequities.
objectiveTo facilitate racial equity in long COVID care, the purpose of this qualitative study was to inform the development of care strategies that are responsive to the experiences and perspectives of Black patients with long COVID in the United States of America.
methodsUsing convenience sampling, we conducted race-concordant, semi-structured, and open-ended interviews with Black adults (80% female, mean age = 39) who had long COVID. We transcribed and anonymized the recorded interviews. We analyzed the transcripts using inductive, thematic analysis. Theme development focused on who can help or hinder strategies for reducing health inequities, what should be done to change care policies or treatment strategies, and when are the critical timepoints for intervention.
resultsWe developed four main themes. Participants reported challenges before and after COVID testing. Many participants contacted primary care physicians as a first step for long COVID treatment. However, not all respondents had positive experiences and at times felt dismissed. Without a qualifying diagnosis, participants could not obtain disability benefits, which negatively influenced their employment and increased financial hardship.
conclusionsThere are possible targets for improving long COVID care, from COVID testing through to long-term treatment plans. There is a need to increase long COVID awareness among physicians. Diagnosis and a standardized treatment plan could help patients avoid unnecessary healthcare utilization and obtain comprehensive support.
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