Evidence map›Paper›PMID 35905309›Full record

ArticleHaemophilia : the official journal of the World Federation of Hemophilia2022

Validation of the pedHAL

Isolde A R Kuijlaars, Janjaap van der Net, Lize F D van Vulpen, Mariette H E Driessens, Saskia E M Schols, Melanie Tan, Samantha C Gouw, Kathelijn Fischer

Open access · hybridAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Haemophilia : the official journal of the World Federation of Hemophilia, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
0.6field-weighted citation impact, top 29% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 4 citations in OpenAlex.

  1. Article
  2. Validation of the pedHALHaemophilia : the official journal of the World Federation of Hemophilia · 2022
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 5 institutions in 1 country.

Isolde A R KuijlaarsCenter for Benign Haematology, Thrombosis and Haemostasis, Van Creveldkliniek, University Medical Center Utrecht, Utrecht University, Utrecht, the Netherlands.ORCID https://orcid.org/0000-0003-2920-2258
Janjaap van der NetCenter for Child Development, Exercise and Physical Literacy, University Medical Center Utrecht, Utrecht University, University Children's Hospital, Utrecht, the Netherlands.ORCID https://orcid.org/0000-0003-2606-5104
Lize F D van VulpenCenter for Benign Haematology, Thrombosis and Haemostasis, Van Creveldkliniek, University Medical Center Utrecht, Utrecht University, Utrecht, the Netherlands.ORCID https://orcid.org/0000-0003-3242-5524
Mariette H E DriessensNetherlands Haemophilia Society (NVHP), Nijkerk, the Netherlands.
Saskia E M ScholsDepartment of Haematology, Radboud University Medical Center, Nijmegen, the Netherlands.
Melanie TanDepartment of Vascular Medicine, Amsterdam Cardiovascular Sciences, Amsterdam University Medical Centers, University of Amsterdam, Amsterdam, the Netherlands.
Samantha C GouwEmma Children's Hospital, Amsterdam UMC, University of Amsterdam, Pediatric Hematology, Amsterdam, the Netherlands.ORCID https://orcid.org/0000-0002-1957-4122
Kathelijn FischerCenter for Benign Haematology, Thrombosis and Haemostasis, Van Creveldkliniek, University Medical Center Utrecht, Utrecht University, Utrecht, the Netherlands.ORCID https://orcid.org/0000-0001-7126-6613
Utrecht University · NLAmsterdam University Medical Centers · NLLeiden University Medical Center · NLNederlandse Vereniging voor Kindergeneeskunde · NLRadboud University Nijmegen · NL

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionThe Haemophilia Activities List (HAL) and paediatric HAL assess self-reported limitations in various daily activities. To reduce patient burden, shorter versions of the pedHAL (22 items) and HAL (18 items) have been developed.

aimThis study aimed to determine the agreement between the pedHAL/HAL

methodsA cross-sectional secondary analysis of the Hemophilia in the Netherlands-6 national survey was performed. Adult and paediatric PWH completed the original pedHAL/HAL

resultsWe included 113 children (median 10y [range 4-17], 53% severe haemophilia) and 691 adults (median 51y [range 18-88], 35% severe). Scores of the pedHAL/HAL

conclusionThis study confirmed the agreement between the pedHAL/HAL

Indexed as

Hemophilia AAdultCanadaChildCross-Sectional StudiesHumansQuality of LifeReproducibility of ResultsSelf ReportSurveys and Questionnairesactivitieshaemophiliaparticipationpatient-reported outcomevalidity

Identifiers

PMID35905309
PMCPMC9796045
OpenAlexW4288698502

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.