Evidence map›Paper›PMID 35887653›Full record

ArticleJournal of personalized medicine2022

Transition in Sickle Cell Disease (SCD): A German Consensus Recommendation.

Ferras Alashkar, Carmen Aramayo-Singelmann, Janine Böll, Annette Hoferer, Andrea Jarisch, Haytham Kamal, Lena Oevermann, Michaela Schwarz, Holger Cario

Open access · goldAbstract read
In one paragraph

Article in Journal of personalized medicine, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
2.0field-weighted citation impact, top 15% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 8 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 7 institutions in 1 country.

Ferras AlashkarDepartment of Hematology and Stem Cell Transplantation, West German Cancer Center, University Hospital Essen, University of Duisburg-Essen, 45147 Essen, Germany.ORCID 0000-0001-7530-8892
Carmen Aramayo-SingelmannDepartment of Pediatrics III, University Children's Hospital Essen, University of Duisburg-Essen, 45147 Essen, Germany.
Janine BöllDepartment I of Internal Medicine, Center for Integrated Oncology Aachen Bonn Cologne Düsseldorf, University Hospital of Cologne, 50923 Cologne, Germany.
Annette HofererHematology/Oncology Department for Adolescent Medicine, Robert-Bosch-Hospital, 70376 Stuttgart, Germany.
Andrea JarischDepartment for Children and Adolescents, Division for Stem Cell Transplantation and Immunology, University Hospital Frankfurt, 60590 Frankfurt am Main, Germany.
Haytham KamalJoint Practice for Hematology and Oncology, 30625 Hannover, Germany.
Lena OevermannDepartment of Pediatric Oncology & Hematology, Charité University Medicine, 10117 Berlin, Germany.ORCID 0000-0001-6828-1783
Michaela SchwarzDepartment of Hematology, Oncology, and Tumor Immunology, Charité University Medicine, 10117 Berlin, Germany.
Holger CarioDepartment of Pediatrics and Adolescent Medicine & Center for Rare Hematopoietic Disorders and Immunodeficiencies (ZSHI Ulm), Ulm University Medical Center, 89069 Ulm, Germany.
Charité - Universitätsmedizin Berlin · DEUniversity of Duisburg-Essen · DEDüsseldorf University Hospital · DEGoethe University Frankfurt · DEMedizinische Hochschule Hannover · DERobert Bosch Hospital · DEUniversität Ulm · DE

Funding

Deutsche Forschungsgemeinschaft DFG; grant FU356/12-1
6 · The paper itself

Abstract

Sickle cell disease (SCD) is considered a rare disease in Germany. Due to the increasing prevalence, the acute and chronic morbidities associated with the disease and the sharp increase in the mortality rate of young adults, a need-based transition structure for patients with SCD in Germany is explicitly required. This is the first multicenter German consensus statement addressing the importance of implementing a standardized transition guideline that allows adolescents and young adults to safely transition from pediatric to adult care. Early identification of medical needs and intervention remains important in the context of chronic diseases. Effective measures can improve health care in general, as they lead to a reduction in disease and the consequential economic burden. It is noteworthy that improving structural barriers remains a key challenge even in highly developed countries such as Germany. Inclusion of these transition services for patients with SCD into the regular care of chronically ill adolescents and young adults should be ensured, as well as the coverage of costs associated with a structured transition process.

Indexed as

child blood non-malignant diseasesethics issues and patient-oriented perspectivesGermanypatient registries and standardizationsickle cell disease (SCD)transition

Identifiers

PMID35887653
PMCPMC9325299
OpenAlexW4285731836

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.