Evidence map›Paper›PMID 35869890›Full record

ArticlePediatric blood & cancer2022

An initial investigation of using smartphone-enabled micro-temporal data collection to increase acceptability, feasibility, and validity of research on cancer caregiving.

Elizabeth G Bouchard, R Lorraine Collins, Paula C Vincent, Hital Patel, Olle Jane Z Sahler, Christopher McCarty, Mark A Prince, Kara M Kelly

Open access · greenAbstract read
In one paragraph

Article in Pediatric blood & cancer, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact, top 90% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 1 citations in OpenAlex.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 5 institutions in 1 country.

Elizabeth G BouchardDepartment of Cancer Prevention and Control, Roswell Park Comprehensive Cancer Center, Buffalo, New York, USA.ORCID 0000-0003-3570-4609
R Lorraine CollinsDepartment of Community Health and Health Behavior, University at Buffalo, Buffalo, New York, USA.
Paula C VincentDepartment of Cancer Prevention and Control, Roswell Park Comprehensive Cancer Center, Buffalo, New York, USA.
Hital PatelDepartment of Cancer Prevention and Control, Roswell Park Comprehensive Cancer Center, Buffalo, New York, USA.
Olle Jane Z SahlerDepartment of Pediatrics, University of Rochester, Rochester, New York, USA.ORCID 0000-0002-2451-9881
Christopher McCartyDepartment of Anthropology, University of Florida, Gainesville, Florida, USA.
Mark A PrinceDepartment of Psychology, Colorado State University, Fort Collins, Colorado, USA.
Kara M KellyDepartment of Pediatric Oncology, Roswell Park Comprehensive Cancer Center, Roswell Park Comprehensive Cancer Center, Buffalo, New York, USA.
Roswell Park Comprehensive Cancer Center · USColorado State University · USUniversity at Buffalo, State University of New York · USUniversity of Florida · USUniversity of Rochester · US

Funding

Two-Spirit Films in Indigenous Cancer HealthP30CA016056 · NCI · ROSWELL PARK CANCER INSTITUTE CORP · PI CANDACE S JOHNSON · 1985 to 2026
$116.6M
The Influence of Social Network Size, Composition and Function on Psychological Outcomes of Pediatric Cancer Caregiving: Relationships across Time and around Periods of DistressR01CA207540 · NCI · ROSWELL PARK CANCER INSTITUTE CORP · PI BOUCHARD, ELIZABETH · 2017 to 2021
$2.9M
NCI NIH HHS P30 CA016056NCI NIH HHS R01 CA207540
6 · The paper itself

Abstract

purposeSmartphone-enabled micro-temporal data collection has potential to increase reliability, validity, and feasibility of participant-reported data and is a promising strategy for pediatric oncology supportive care and quality-of-life research. Given the demands of pediatric cancer caregiving, we sought to understand the feasibility and acceptability of smartphone data collection that included short surveys administered daily for 14 days via text message link.

methodsWe recruited pediatric cancer caregivers, whose children (ages 0-18 years) were on active treatment, to complete a 14-day daily survey study via smartphone. We implemented our study procedures and examined feasibility through study enrollment rates, reasons for refusal, retention rates, number of reminders and number of completed surveys. We examined acceptability using caregiver ratings of survey length, burden, and ease of completion on a smartphone.

resultsWe recruited (N = 75) caregivers to the study and had an 84% enrollment rate. Reasons for declining participation included passive refusal (n = 13) and too busy (n = 1). The participant retention rate was 100% and compliance with daily survey completion was 99%. Most surveys were completed following two prompts and took participants 5 minutes or less to complete. Caregivers rated the surveys as easy to complete, low burden, and just right in length.

conclusionA daily self-report, using a brief (≤5 minutes) survey administered on a smartphone via text message prompt, is a feasible and acceptable method. Future research should extend these findings to understand the generalizability across pediatric cancer caregiving contexts.

Indexed as

NeoplasmsSmartphoneAdolescentChildChild, PreschoolFeasibility StudiesHumansInfantInfant, NewbornReproducibility of ResultsSurveys and Questionnairesbehavioral studiesoutcomes researchpediatric oncologypsychosocialquality of life

Identifiers

PMID35869890
PMCPMC10273258
OpenAlexW4286715765

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.