Evidence map›Paper›PMID 35869128›Full record

ArticleScientific reports2022

The French EVAL-PLH cohort of persons with polyhandicap.

Ilyes Hamouda, Marie-Christine Rousseau, Any Beltran Anzola, Marie-Anastasie Aim, Thierry Billette de Villemeur, Pascal Auquier, Karine Baumstarck, EVAL-PLH group

Open access · goldAbstract read
In one paragraph

Article in Scientific reports, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
1.6field-weighted citation impact, top 17% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 11 citations in OpenAlex.

  1. Trial
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 7 institutions in 2 countries.

Ilyes HamoudaEA 3279, CEReSS - Research Centre on Health Services and Quality of Life, Faculté des Sciences Médicale et Paramédicales, Aix Marseille University, 27, Boulevard Jean-Moulin, 13385, Marseille Cedex 05, France.
Marie-Christine RousseauEA 3279, CEReSS - Research Centre on Health Services and Quality of Life, Faculté des Sciences Médicale et Paramédicales, Aix Marseille University, 27, Boulevard Jean-Moulin, 13385, Marseille Cedex 05, France.
Any Beltran AnzolaEA 3279, CEReSS - Research Centre on Health Services and Quality of Life, Faculté des Sciences Médicale et Paramédicales, Aix Marseille University, 27, Boulevard Jean-Moulin, 13385, Marseille Cedex 05, France.
Marie-Anastasie AimUR 849, LPS - Social Psychology Laboratory, Aix-Marseille University, 29 Av. Robert Schuman, 13621, Aix-en-Provence, France.
Thierry Billette de VillemeurClinical Research Group GRC ConCer-LD, Sorbonne University and Pierre-et-Marie-Curie University, 4, Place Jussieu, 75005, Paris, France.
Pascal AuquierEA 3279, CEReSS - Research Centre on Health Services and Quality of Life, Faculté des Sciences Médicale et Paramédicales, Aix Marseille University, 27, Boulevard Jean-Moulin, 13385, Marseille Cedex 05, France.
Karine BaumstarckEA 3279, CEReSS - Research Centre on Health Services and Quality of Life, Faculté des Sciences Médicale et Paramédicales, Aix Marseille University, 27, Boulevard Jean-Moulin, 13385, Marseille Cedex 05, France. karine.baumstarck@univ-amu.fr.
EVAL-PLH group
Aix-Marseille Université · FRSorbonne Université · FRMinistère des Solidarités et de la Santé · FRAssistance Publique – Hôpitaux de Paris · FRCeres · USl'Assurance Maladie · FRHôpital Marin de Hendaye · FR

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Polyhandicap is characterized by a combination of profound intellectual disability and serious motor deficit, resulting in the extreme restriction of autonomy and communication. The aim of the EVAL-PLH (EVALuation PoLyHandicap) study is to identify the impact of socioeconomic, environmental, and epidemiological determinants on the health status of the persons with polyhandicap and the daily lives of their caregivers. EVAL-PLH is a prospective cohort study. The study involved persons with severe polyhandicap (who were cared for at reeducation centers, residential facilities, and one specialized pediatric/neurological department of a university hospital), their familial caregivers and the institutional caregivers. Data collection included sociodemographics, heath status, and psychocomportemental information. Data have been collected at 2 points (2015-2016 and 2020-2021). The French EVAL-PLH cohort is the first cohort study focusing on persons with polyhandicap, their families, and the health care workers caring for them. The sustainability of the device is essential to assist patients, families, clinicians, and health decision-making authorities in the optimization of care management.

Indexed as

Persons with DisabilitiesCaregiversChildCohort StudiesCross-Sectional StudiesHealth StatusHumansProspective Studies

Identifiers

PMID35869128
PMCPMC9305042
OpenAlexW4286698371

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.