Evidence map›Paper›PMID 35861919›Full record

ArticleHaemophilia : the official journal of the World Federation of Hemophilia2022

Sixth Åland Island Conference on von Willebrand disease.

Erik Berntorp, Sonata S Trakymienė, Augusto B Federici, Katharina Holstein, Fernando F Corrales-Medina, Glenn F Pierce, Alok Srivastava, Mario von Depka Prondzinski, Jill M Johnsen, Irena P Zupan and 3 more

Open access · hybridAbstract read
In one paragraph

Article in Haemophilia : the official journal of the World Federation of Hemophilia, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
0.8field-weighted citation impact, top 26% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 5 citations in OpenAlex.

  1. Review
  2. Sixth Åland Island Conference on von Willebrand disease.Haemophilia : the official journal of the World Federation of Hemophilia · 2022
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors at 13 institutions in 9 countries.

Erik BerntorpCentre for Thrombosis and Haemostasis, Skåne University Hospital, Lund University, Malmö, Sweden.ORCID https://orcid.org/0000-0002-2888-4931
Sonata S TrakymienėClinic of Children's Diseases, Vilnius University Hospital Santaros Klinikos, Vilnius University, Vilnius, Lithuania.ORCID https://orcid.org/0000-0003-3576-7116
Augusto B FedericiDepartment of Oncology and Oncologic Haematology, Haematology and Transfusion Medicine, L. Sacco University Hospital, University of Milan, Milan, Italy.
Katharina HolsteinDepartment of Hematology and Oncology, University Medical Centre Hamburg-Eppendorf, Hamburg, Germany.
Fernando F Corrales-MedinaDepartment of Pediatrics, Division of Pediatric Hematology-Oncology, University of Miami - Miller School of Medicine and University of Miami - Hemophilia Treatment Center, Miami, Florida, USA.
Glenn F PierceWorld Federation of Hemophilia, Montreal, Canada.ORCID https://orcid.org/0000-0002-3310-328X
Alok SrivastavaDepartment of Haematology, Christian Medical College, Vellore, India.ORCID https://orcid.org/0000-0001-5032-5020
Mario von Depka ProndzinskiWerlhof Institute, Hannover, Germany.
Jill M JohnsenResearch Institute, Bloodworks, Seattle, Washington, USA.ORCID https://orcid.org/0000-0002-2279-2550
Irena P ZupanDepartment of Haematology, University Medical Centre Ljubljana, Ljubljana, Slovenia.
Susan HalimehCoagulation Centre Rhine Ruhr, Duisburg, Germany.ORCID https://orcid.org/0000-0001-8596-9870
Vuokko NummiCoagulation Disorders Unit, Helsinki University Hospital, Helsinki, Finland.
Jonathan C RobertsBleeding & Clotting Disorders Institute, Peoria, Illinois, USA.ORCID https://orcid.org/0000-0002-9415-9543
Bleeding & Clotting Disorders Institute · USCanadian Hemophilia Society · CAChristian Medical College, Vellore · INHelsinki University Hospital · FILjubljana University Medical Centre · SILund University · SERhine-Ruhr Institute for Applied Systeminnovation · DEUniversität Hamburg · DEUniversity of Miami · USUniversity of Milan · ITUniversity of Washington · USVilnius University · LTWerlhof Institute · DE

Funding

Octapharma AG
6 · The paper itself

Abstract

introductionThe sixth Åland Islands Conference on von Willebrand disease (VWD) on the Åland Islands, Finland, was held from 20 to 22 September 2018.

aimThe meeting brought together experts in the field of VWD from around the world to share the latest advances and knowledge in VWD. RESULTS AND DISCUSSION: The topics covered both clinical aspects of disease management, and biochemical and laboratory insights into the disease. The clinical topics discussed included epidemiology, diagnosis and treatment of VWD in different countries, management of children with VWD, bleeding control during surgery, specific considerations for the management of type 3 VWD and bleeding control in women with VWD. Current approaches to the management of acquired von Willebrand syndrome were also discussed. Despite significant advances in the understanding and therapeutic options for VWD, there remain many challenges to be overcome in order to optimise patient care. In comparison with haemophilia A, there are very few registries of VWD patients, which would be a valuable source of data on the condition and its management. VWD is still underdiagnosed, and many patients suffer recurrent or severe bleeding that could be prevented. Awareness of VWD among healthcare practitioners, including non-haematologists, should be improved to allow timely diagnosis and intervention. Diagnosis remains challenging, and the development of fast, simple assays may help to facilitate accurate and rapid diagnosis of VWD.

Indexed as

von Willebrand Diseasesvon Willebrand Disease, Type 3ChildCongresses as TopicFemaleFinlandHemorrhageHumansRegistriesvon Willebrand Factorvon Willebrand Factordiagnosispregnancysurgeryvon Willebrand diseasevon Willebrand factor

Identifiers

PMID35861919
PMCPMC9543245
OpenAlexW4286511932

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.