Evidence map›Paper›PMID 35854364›Full record

ArticleResearch involvement and engagement2022

Standardised data on initiatives-STARDIT: Beta version.

Jack S Nunn, Thomas Shafee, Steven Chang, Richard Stephens, Jim Elliott, Sandy Oliver, Denny John, Maureen Smith, Neil Orr, Jennifer Preston and 15 more

Open access · goldAbstract read
In one paragraph

Article in Research involvement and engagement, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers.

0numbers the graph read from it
0cells of the map it votes in
14citing papers in PubMed
2.8field-weighted citation impact, top 10% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

14 citing papers in PubMed, 15 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

25 authors at 14 institutions in 8 countries.

Jack S NunnDirector of Science for All (Education Charity Registered in Australia), Melbourne, Australia. Jack.Nunn@ScienceForAll.World.ORCID http://orcid.org/0000-0003-0316-3254
Thomas ShafeeSchool of Life Sciences, La Trobe University, Melbourne, VIC, Australia.
Steven ChangLa Trobe University, Melbourne, VIC, Australia.
Richard StephensPatient Advocate, Co-Editor-in-Chief, 'Research Involvement and Engagement', London, UK.
Jim ElliottPublic Involvement Lead at Health Research Authority (England), London, UK.
Sandy OliverProfessor of Public Policy at UCL Social Research Institute, London, UK.
Denny JohnAdjunct Professor, Ramaiah University of Applied Sciences, Bengaluru, India.
Maureen SmithCochrane Consumer Executive Chair, Ottawa, Canada.
Neil OrrDepartment of Linguistics, Faculty of Medicine, Health and Human Sciences, Macquarie University, Sydney, Australia.
Jennifer PrestonNational Institute for Health and Care Research, Alder Hey Clinical Research Facility, Liverpool, UK.
Josephine BorthwickUniversity of Melbourne, Melbourne, Australia.
Thijs van VlijmenTaylor and Francis, Abingdon, UK.
James AnsellConsumers Health Forum of Australia, Deakin, Australia.
Francois HouyezEuropean Organisation for Rare Diseases, Paris, France.
Maria Sharmila Alina de SousaIndependent Impact Intelligence Design & Strategy Consultant, Research Impact Academy Brazil Ambassador, Sao Paulo, Brazil.
Roan D PlotzApplied Ecology and Environmental Change Research Group, Institute for Sustainable Industries and Liveable Cities, Victoria University, Melbourne, Australia.
Jessica L OliverAustralian Citizen Science Association, Sydney, Australia.
Yaela GolumbicUniversity of Sydney, Sydney, Australia.
Rona MacnivenThe Poche Centre for Indigenous Health, Faculty of Medicine and Health, The University of Sydney, Sydney, NSW, 2006, Australia.
Samuel WinesCo-Labs Melbourne, Melbourne, Australia.
Ann BordaUniversity of Melbourne, Melbourne, Australia.
Håkon da Silva HyldmoDepartment of Geography, Norwegian University of Science and Technology, Trondheim, Norway.
Pen-Yuan HsingUniversity of Bath, Bath, UK.
Lena DenisJohns Hopkins University, Baltimore, USA.
Carolyn ThompsonUniversity College London, London, UK.
La Trobe University · AUThe University of Sydney · AUThe University of Melbourne · AUCochrane · CAEuropean Organisation for Rare Diseases · FRJohns Hopkins University · USM S Ramaiah University of Applied Sciences · INNorwegian University of Science and Technology · NOPatient Advocate Foundation · USTaylor and Francis (United Kingdom)University of Bath · GBUniversity of Johannesburg · ZAVictoria University · AUZoological Society of London · GB

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

BACKGROUND AND

objectiveThere is currently no standardised way to share information across disciplines about initiatives, including fields such as health, environment, basic science, manufacturing, media and international development. All problems, including complex global problems such as air pollution and pandemics require reliable data sharing between disciplines in order to respond effectively. Current reporting methods also lack information about the ways in which different people and organisations are involved in initiatives, making it difficult to collate and appraise data about the most effective ways to involve different people. The objective of STARDIT (Standardised Data on Initiatives) is to address current limitations and inconsistencies in sharing data about initiatives. The STARDIT system features standardised data reporting about initiatives, including who has been involved, what tasks they did, and any impacts observed. STARDIT was created to help everyone in the world find and understand information about collective human actions, which are referred to as 'initiatives'. STARDIT enables multiple categories of data to be reported in a standardised way across disciplines, facilitating appraisal of initiatives and aiding synthesis of evidence for the most effective ways for people to be involved in initiatives. This article outlines progress to date on STARDIT; current usage; information about submitting reports; planned next steps and how anyone can become involved.

methodSTARDIT development is guided by participatory action research paradigms, and has been co-created with people from multiple disciplines and countries. Co-authors include cancer patients, people affected by rare diseases, health researchers, environmental researchers, economists, librarians and academic publishers. The co-authors also worked with Indigenous peoples from multiple countries and in partnership with an organisation working with Indigenous Australians. RESULTS AND DISCUSSION: Over 100 people from multiple disciplines and countries have been involved in co-designing STARDIT since 2019. STARDIT is the first open access web-based data-sharing system which standardises the way that information about initiatives is reported across diverse fields and disciplines, including information about which tasks were done by which stakeholders. STARDIT is designed to work with existing data standards. STARDIT data will be released into the public domain (CC0) and integrated into Wikidata; it works across multiple languages and is both human and machine readable. Reports can be updated throughout the lifetime of an initiative, from planning to evaluation, allowing anyone to be involved in reporting impacts and outcomes. STARDIT is the first system that enables sharing of standardised data about initiatives across disciplines. A working Beta version was publicly released in February 2021 (ScienceforAll.World/STARDIT). Subsequently, STARDIT reports have been created for peer-reviewed research in multiple journals and multiple research projects, demonstrating the usability. In addition, organisations including Cochrane and Australian Genomics have created prospective reports outlining planned initiatives.

conclusionsSTARDIT can help create high-quality standardised information on initiatives trying to solve complex multidisciplinary global problems.

Indexed as

DataDemocracyEvidenceGenomicsHealthIndigenousOpenParticipatoryStandardisedSystematic

Identifiers

PMID35854364
PMCPMC9294764
OpenAlexW4285793500

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.