ArticlePloS one2022
Transitions and challenges for people with Parkinson's and their family members: A qualitative study.
Article in PloS one, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
9 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Care partner needs in Parkinson's disease: A systematic review of qualitative and quantitative data.Journal of Parkinson's disease · 2025Pooled it
- Clinical and Cost-Effectiveness of the "UCL Live Well With Parkinson's" Toolkit: A Randomised Controlled Trial.The Lancet regional health. Europe · 2026Article
- Recommendations to Improve Healthcare Service Provision for Cognitive Impairment in People With Parkinson's Disease: A Mixed Methods Study of the Lived Experience Expert Perspective.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Observed and Patient-Perceived Information Provision When Diagnosed With Parkinson's Disease.Movement disorders clinical practice · 2025Observational
- Far from being the end of the road: taking a closer look at neuropalliative care in Parkinson's disease.Journal of neural transmission (Vienna, Austria : 1996) · 2025Review
- Co-Design of a Facilitated Self-Management Toolkit for People With Parkinson's Disease.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Compound impact of cognitive and physical decline: A qualitative interview study of people with Parkinson's and cognitive impairment, caregivers and professionals.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Concept Mapping to Define Components for an Occupation-Based Intervention for Parkinson's Disease and Anxiety.Journal of Parkinson's disease · 2024Article
- Health care experiences of people with Parkinson's disease in Australia.BMC geriatrics · 2023Article
Corrections and comments
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Authors and funding
9 authors.
Funding
Abstract
objectiveTo explore the experiences and challenges of people with Parkinson's and their family members living in the community through the lens of their transitions to better understand the phases and changes in their lives.
designQualitative study using semi-structured interviews and analysed using codebook thematic analysis. SETTING/
participantsPurposive sampling was used in primary and secondary healthcare services across Southern England in 2019 to recruit 21 people with Parkinson's (aged between 45-89 years) and 17 family members (13 spouses and 4 adult children, aged between 26-79 years).
resultsParticipants' descriptions were classified in three main phases of transition from a place of health towards greater dependency on others: 1) 'Being told you are a person with Parkinson's' (early), 2) 'Living with Parkinson's' (mid), and 3) 'Increasing dependency' (decline). Seven sub-themes were identified to describe the transitions within these three phases: phase 1: receiving and accepting a diagnosis; navigating reactions; phase 2: changing social interactions and maintaining sense of self; information: wanting to know but not wanting to know; finding a place within the healthcare system; and 3: changes in roles and relationships; and increasingly dependent.
conclusionThis study has identified points of change and means of supporting key transitions such as diagnosis, changes in social connections, and increased use of secondary healthcare services so that comprehensive, holistic, individualised and well-timed support can be put in place to maintain well-being.
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Registered trials
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