ArticlePalliative medicine2022
Employment and family caregiving in palliative care: An international qualitative study.
Article in Palliative medicine, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
6 citing papers in PubMed, 13 citations in OpenAlex.
- Readiness for home-based palliative care among primary caregivers: an explanatory sequential mixed methods study.BMC palliative care · 2026Article
- "We do what needs to be done": caregivers' experiences of healthcare and support for people with multiple long-term conditions in the last year of life.BMC palliative care · 2026Article
- Economic Disparities in Palliative Care Utilization Among Cancer Patients in Saudi Arabia: A Socioeconomic Stratification Analysis.Current oncology (Toronto, Ont.) · 2026Article
- Characteristics and population estimates of unpaid end of life carers: An observational study.Palliative medicine · 2025Observational
- Home-Based Palliative Care: Benefits, Challenges, Opportunities and Future Directions in a Super-Aged Society.Journal of hospice and palliative care · 2025Review
- Family caregivers' role in dignity: A qualitative study can we change the title to : Dignity in Serious Illness: A Qualitative Exploration of Family Caregivers' Contributions in low middle-income country.Palliative & supportive care · 2025Article
Corrections and comments
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Authors and funding
5 authors at 2 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundFamily caregivers provide the majority of palliative care. The impact of family caregiving on employment and finances has received little research attention in the field of palliative care.
aimThe aim of this study was to explore perspectives and experiences of combining paid employment with palliative care family caregiving, and to assess the availability and suitability of employment support across three countries - the United Kingdom (UK), Aotearoa New Zealand and Canada.
designA qualitative descriptive study design was used. Semi-structured interviews were held with 30 key informants with professional or personal experience in palliative care from the UK (
resultsFour main themes were identified: (1) significant changes to working practices are required to enable end of life family carers to remain in work; (2) the negative consequences of combining caregiving and employment are significant, for both patient and carer; (3) employer support for working end of life caregivers is crucial but variable and; (4) national, federal and government benefits for working end of life family carers are necessary.
conclusionSupporting carers to retain employment whilst providing care has potential benefits for the patient at end of life, the caregiver, and the wider economy and labour market. Employers, policymakers and governments have a role to play in developing and implementing policies to support working carers to remain in employment.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.