Evidence map›Paper›PMID 35846245›Full record

ArticleJournal of patient experience2022

A Multiple Stakeholder Perspective on the Impact of COVID-19 on Dementia Care.

Carole L White, Sara S Masoud, Ashlie A Glassner, Shanae Rhodes, Mayra Mendoza, Kylie Meyer

Open access · diamondAbstract read
In one paragraph

Article in Journal of patient experience, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
1.0field-weighted citation impact, top 25% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 5 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 2 institutions in 1 country.

Carole L WhiteCaring for the Caregiver Program, School of Nursing, UT Health San Antonio, San Antonio, TX, USA.ORCID https://orcid.org/0000-0002-3264-7760
Sara S MasoudCaring for the Caregiver Program, School of Nursing, UT Health San Antonio, San Antonio, TX, USA.
Ashlie A GlassnerCaring for the Caregiver Program, School of Nursing, UT Health San Antonio, San Antonio, TX, USA.
Shanae RhodesCaring for the Caregiver Program, School of Nursing, UT Health San Antonio, San Antonio, TX, USA.
Mayra MendozaCaring for the Caregiver Program, School of Nursing, UT Health San Antonio, San Antonio, TX, USA.
Kylie MeyerCaring for the Caregiver Program, School of Nursing, UT Health San Antonio, San Antonio, TX, USA.
The University of Texas Health Science Center at Houston · USInstitute for Neurodegenerative Disorders · US

Funding

South Texas Alzheimer's Disease Research CenterP30AG066546 · NIA · UNIVERSITY OF TEXAS HLTH SCIENCE CENTER · PI Sudha Seshadri · 2021 to 2026
$24.0M
SARS-CoV-2 and Precursors of Alzheimer's Disease and Related Dementias: An Ultrahigh Field (7T) MRI Study in a Diverse Multinational CohortR56AG074467 · NIA · UNIVERSITY OF TEXAS HLTH SCIENCE CENTER · PI GIRARD, TIMOTHY D, HOSSEINI, AKRAM A. · 2021 to 2021
$3.5M
NIA NIH HHS P30 AG066546NIA NIH HHS R56 AG074467
6 · The paper itself

Abstract

The aim of this study was to describe the impact of the COVID-19 pandemic on dementia care from a multiple stakeholder perspective. We used a multi-method design, with a cross-sectional survey followed by focus groups/interviews. Surveys were completed by people living with dementia (n  =  27), family caregivers (n  =  161), and health and social care professionals (n  =  77). A sub-sample (n  =  55) participated in an interview or one of 9 focus groups. Surveys were analyzed with descriptive statistics and focus group/interview data were analyzed using a thematic approach. Participants reported an impact of COVID-19 on dementia care, including less access to care and resources for care. Telehealth and tele-support/education were reported to be effective alternatives to support care. Themes from the qualitative data about dementia care were: (1) planning and providing care, (2) making choices around risk and safety, (3) experiences of loss, and (4) technology and dementia care. The results of this study present opportunities to improve the quality of care through addressing inequities and identifying improved and innovative approaches to address social isolation and virtual care for this vulnerable population.

Indexed as

access to carecaregivingCOVID-19dementiapatient engagementqualitative methodssurvey data

Identifiers

PMID35846245
PMCPMC9277433
OpenAlexW4285058255

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.