Evidence map›Paper›PMID 35841019›Full record

Observational studyBMC palliative care2022

Implementing Advance Care Planning for dialysis patients: HIGHway project.

Giselle Rodriguez de Sosa, Amanda Nicklas, Mae Thamer, Elizabeth Anderson, Naveena Reddy, JoAnn Stevelos, Michael J Germain, Mark L Unruh, Dale E Lupu

Registry-linked trialOpen access · goldAbstract readObservational Study
PubMed Full text at PMC Publisher
In one paragraph

Observational study in BMC palliative care, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05324878 (HIGHway Project), which is not on this map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
1.2field-weighted citation impact, top 22% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT05324878 completednot on this map

HIGHway Project: Honoring Individual Goals and Hopes: Implementing Advance Care Planning for Persons With Kidney Disease on Dialysis

TypeobservationalSponsorGeorge Washington UniversityRan2021 to 2024Enrolled55ConditionsKidney Diseases, Kidney FailureArmsTraining
3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 6 citations in OpenAlex.

  1. Trial
  2. Article
  3. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 5 institutions in 1 country.

Giselle Rodriguez de SosaDepartment of Medicine, University of New Mexico, Albuquerque, NM, USA. grsosa@salud.unm.edu.
Amanda NicklasSchool of Nursing, George Washington University, Washington, DC, USA.
Mae ThamerMedical Technology and Practice Patterns Institute, Bethesda, MD, USA.
Elizabeth AndersonPacific Institute for Research and Evaluation, Cullowhee, USA.
Naveena ReddySupportive Kidney Care, Springfield, MA, 01107, USA.
JoAnn StevelosSchool of Nursing, George Washington University, Washington, DC, USA.
Michael J GermainRenal and Transplant Associates of New England, PC, Springfield, MA, 01107, USA.
Mark L UnruhDepartment of Medicine, University of New Mexico, Albuquerque, NM, USA.
Dale E LupuCenter of Aging, Health and Humanities, George Washington University, Washington DC, USA.
George Washington University · USUniversity of New Mexico · USKidney Associates · USMedical Technology and Practice Patterns Institute · USPacific Institute For Research and Evaluation · US

Funding

Patient-Centered Outcomes Research Institute DI-2020C2-20362
6 · The paper itself

Abstract

backgroundPatients undergoing hemodialysis have a high mortality rate and yet underutilize palliative care and hospice resources. The Shared Decision Making-Renal Supportive Care (SDM-RSC) intervention focused on goals of care conversations between patients and family members with the nephrologist and social worker. The intervention targeted deficiencies in communication, estimating prognosis, and transition planning for seriously ill dialysis patients. The intervention showed capacity to increase substantially completion of advance care directives. The HIGHway Project, adapted from the previous SDM-RSC, scale up training social workers or nurses in dialysis center in advance care planning (ACP), and then support them for a subsequent 9-month action period, to engage in ACP conversations with patients at their dialysis center regarding their preferences for end-of-life care.

methodsWe will train between 50-60 dialysis teams, led by social workers or nurses, to engage in ACP conversations with patients at their dialysis center regarding their preferences for end-of-life care. This implementation project uses the Knowledge to Action (KTA) Framework within the Consolidated Framework for Implementation Research (CFIR) to increase adoption and sustainability in the participating dialysis centers. This includes a curriculum about how to hold ACP conversation and coaching with monthly teleconferences through case discussion and mentoring. An application software will guide on the process and provide resources for holding ACP conversations. Our project will focus on implementation outcomes. Success will be determined by adoption and effective use of the ACP approach. Patient and provider outcomes will be measured by the number of ACP conversations held and documented; the quality and fidelity of ACP conversations to the HIGHway process as taught during education sessions; impact on knowledge and skills; content, relevance, and significance of ACP intervention for patients, and Supportive Kidney Care (SKC) App usage. Currently HIGHway is in the recruitment stage. DISCUSSION: Effective changes to advance care planning processes in dialysis centers can lead to institutional policy and protocol changes, providing a model for patients receiving dialysis treatment in the US. The result will be a widespread improvement in advance care planning, thereby remedying one of the current barriers to patient-centered, goal-concordant care for dialysis patients.

trial registrationThe George Washington University Protocol Record NCR213481, Honoring Individual Goals and Hopes: Implementing Advance Care Planning for Persons with Kidney Disease on Dialysis, is registered in ClinicalTrials.gov Identifier: NCT05324878 on April 11

Indexed as

Advance Care PlanningTerminal CareAdvance DirectivesHumansNephrologistsRenal DialysisAdvance Care PlanningDialysis patientsImplementation researchPatient- centered careShared decision makingSocial workersSupportive care

Identifiers

PMID35841019
PMCPMC9286956
OpenAlexW4285588852

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.