Evidence map›Paper›PMID 35838761›Full record

ArticleJMIR nursing2022

Acceptability of an mHealth Family Self-management Intervention (myFAMI) for Pediatric Transplantation Families: Qualitative Focus.

Stacee Marie Lerret, Erin Flynn, Rosemary White-Traut, Estella Alonso, Alisha M Mavis, M Kyle Jensen, Caitlin G Peterson, Rachel Schiffman

Registry-linked trialOpen access · goldAbstract read
In one paragraph

Article in JMIR nursing, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03533049 (mHealth Family Self-Management Intervention for Parents of Transplanted Children), which is not on this map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
0.2field-weighted citation impact, top 55% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT03533049 nacompletednot on this map

mHealth Family Self-Management Intervention for Parents of Transplanted Children

TypeinterventionalSponsorMedical College of WisconsinRan2018 to 2020Enrolled67ConditionsTransplantation, Pediatric ALLArmsmyFAMI
3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 1 citations in OpenAlex.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 7 institutions in 1 country.

Stacee Marie Lerret *Division of Pediatric Gastroenterology, Hepatology, and Nutrition, Department of Pediatrics, Medical College of Wisconsin, Milwaukee, WI, United States.ORCID https://orcid.org/0000-0002-3760-7127
Erin FlynnCincinnati Children's Hospital Medical Center, Cincinnati, OH, United States.ORCID https://orcid.org/0000-0001-5476-0003
Rosemary White-TrautDepartment of Nursing Research, Children's Wisconsin, Milwaukee, WI, United States.ORCID https://orcid.org/0000-0002-0731-346X
Estella AlonsoDivision of Pediatric Gastroenterology, Hepatology, and Nutrition, Ann & Robert H Lurie Children's Hospital, Northwestern University Feinberg School of Medicine, Chicago, IL, United States.ORCID https://orcid.org/0000-0002-4056-7752
Alisha M Mavis *Division of Gastroenterology, Hepatology, and Nutrition, Department of Pediatrics, Duke University School of Medicine, Raleigh, NC, United States.ORCID https://orcid.org/0000-0001-6258-4492
M Kyle Jensen *Division of Pediatric Gastroenterology, Department of Pediatrics, University of Utah, Salt Lake City, UT, United States.ORCID https://orcid.org/0000-0003-3072-0554
Caitlin G PetersonDivision of Nephrology, Department of Pediatrics, University of Utah Health, Salt Lake City, UT, United States.ORCID https://orcid.org/0000-0002-7208-6574
Rachel SchiffmanCollege of Nursing, University of Wisconsin-Milwaukee, Milwaukee, WI, United States.ORCID https://orcid.org/0000-0003-0219-7030
University of Utah · USChildren's Hospital of Wisconsin · USCincinnati Children's Hospital Medical Center · USDuke University · USMedical College of Wisconsin · USNorthwestern University · USUniversity of Wisconsin–Milwaukee · US

Funding

mHealth Family Self-management Intervention for Parents of Transplanted ChildrenK23NR017652 · NINR · MEDICAL COLLEGE OF WISCONSIN · PI LERRET, STACEE M · 2018 to 2020
$372k
NINR NIH HHS K23 NR017652
6 · The paper itself

Abstract

backgroundAround 1800 pediatric transplantations were performed in 2021, which is approximately 5% of the annual rate of solid organ transplantations carried out in the United States. Effective family self-management in the transition from hospital to home-based recovery promotes successful outcomes of transplantation. The use of mHealth to deliver self-management interventions is a strategy that can be used to support family self-management for transplantation recipients and their families.

objectiveThe study aims to evaluate the acceptability of an mHealth intervention (myFAMI) that combined use of a smartphone app with triggered nurse communication with family members of pediatric transplantation recipients.

methodsThis is a secondary analysis of qualitative data from family members who received the myFAMI intervention within a larger randomized controlled trial. Eligible participants used the app in the 30-day time frame after discharge and participated in a 30-day postdischarge telephone interview. Content analysis was used to generate themes.

resultsA total of 4 key themes were identified: (1) general acceptance, (2) positive interactions, (3) home management after hospital discharge, and (4) opportunities for improvement.

conclusionsAcceptability of the intervention was high. Family members rated the smartphone application as easy to use. myFAMI allowed the opportunity for families to feel connected to and engage with the medical team while in their home environment. Family members valued and appreciated ongoing support and education specifically in this first 30 days after their child's hospital discharge and many felt it contributed positively to the management of their child's medical needs at home. Family members provided recommendations for future refinement of the app and some suggested that a longer follow-up period would be beneficial. The development and refinement of mHealth care delivery strategies hold potential for improving outcomes for solid organ transplantation patients and their families and as a model to consider in other chronic illness populations.

trial registrationClinicalTrials.gov NCT03533049; https://clinicaltrials.gov/ct2/show/NCT03533049.

Indexed as

family self-managementmHealthpediatric patientsqualitativetransplantation

Identifiers

PMID35838761
PMCPMC9338419
OpenAlexW4283310918

What OpenQuestion holds

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LicenceCC BY
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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.