ArticleJournal of clinical and translational science2022
Utilizing community engagement studios to inform clinical trial design at a Center of Excellence for Alzheimer's Disease.
Article in Journal of clinical and translational science, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
10 citing papers in PubMed, 8 citations in OpenAlex.
- Designing Electronic Problem-Solving Training for Individuals With Traumatic Brain Injury: Mixed Methods, Community-Based, Participatory Research Case Study.Journal of medical Internet research · 2026Article
- Co-production of a National Botswana Tobacco Control Resource Center through Community Engagement Studio.Journal of clinical and translational science · 2026Article
- Community Engagement Studio as a Strategic Tool for Tailoring a Survey on Dental Care Access Among Adolescents.Journal of public health dentistry · 2025Article
- Provider and Parent Perspectives on Pediatric Screening for Research on Early Life Adversity.Health education & behavior : the official publication of the Society for Public Health Education · 2025Article
- Community engagement studios to improve racial diversity and health equity in Parkinson's.Journal of clinical and translational science · 2025Article
- Ask the experts: Community Engagement studios to inform research on cannabis use in cancer symptom management.Journal of clinical and translational science · 2025Article
- Designing for trustworthiness and research reciprocity: An example from the Illinois research network hub in the NIH RECOVER adult cohort study.Journal of clinical and translational science · 2025Article
- Community Engagement Studios to advance multi-site research with older adults.Journal of clinical and translational science · 2024Article
- 2021 Community Engagement Studio Virtual Training Summit: Increasing the Diversity of Stakeholders Engaged in Research.Progress in community health partnerships : research, education, and action · 2024Article
- Laying the groundwork to make diversity, equity, and inclusion front and center in clinical and translational research.Journal of clinical and translational science · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Despite the disproportionate burden of Alzheimer's disease in older adults of color, the scientific community continues to grapple with underrepresentation of racial and ethnic minorities in clinical research. Our Center of Excellence for Alzheimer's Disease (CEAD) collaborated with a local community partner to conduct community engagement (CE) studios to effectively involve our community of diverse older adults in the early planning stages of a clinical trial. Given the COVID-19 pandemic, the in-person studio format was adapted to allow for virtual, real-time participation. Our objective is to describe the process and feasibility of conducting virtual CE studios in an older adult population. Ninety percent of participants were non-Hispanic Black community-dwelling woman aged 60 years and older. The overall background and proposed clinical trial design was presented to the participants who then made recommendations regarding potential recruitment strategies, the use of culturally relevant language to describe the study, and logistical recommendations to improve participation and retention among community members. Our CEAD successfully conducted virtual CE studios during the COVID-19 pandemic, by partnering with a community-based organization, to engage community stakeholders about clinical trial design. CEADs are in a unique position to implement CE studios to better support patient access to clinical trials.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.