ArticleBMC pediatrics2022
Information needs of children with leukemia and their parents' perspectives of their information needs: a qualitative study.
Article in BMC pediatrics, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
13 citing papers in PubMed.
- A longitudinal study of supportive care needs among Chinese parents of children with acute lymphoblastic leukemia.Asia-Pacific journal of oncology nursing · 2026Article
- Mothers' emotional and caregiving experiences during the first month after a child's acute lymphoblastic leukemia diagnosis: A qualitative study.Asia-Pacific journal of oncology nursing · 2026Article
- Communicating cancer diagnoses with children in Japan: A qualitative study of healthcare professionals' beliefs and approaches in pediatric oncology.Palliative care and social practice · 2026Article
- The mediating role of perceived stress between loneliness and medication behavior in Chinese children: a large cross-sectional study.Frontiers in public health · 2026Article
- Developing critical thinking and decision-making skills for cancer information: the Informed Health Choice-Cancer online learning resource.Journal of cancer survivorship : research and practice · 2025Article
- Parents' experiences on handling paediatric anticancer drugs at home after an educational intervention.Journal of evaluation in clinical practice · 2025Article
- Evaluating the feasibility and acceptability of the Informed Health Choices-Cancer programme: A pilot randomised trial protocol.PloS one · 2025Article
- Mothers' efforts to overcome difficult twists and turns in living with children with cancer: a phenomenological study.BMC women's health · 2024Article
- Experiences and preferences of truth-telling in families of children with cancer: A phenomenological study.Asia-Pacific journal of oncology nursing · 2024Article
- Developing and evaluating a cancer communication picture book for children, families, and health care professionals: A mixed-methods feasibility study.Asia-Pacific journal of oncology nursing · 2024Article
- ChatGPT as a Way to Enhance Parents’ Communication in Cases of Oncological Pediatric DiseasesTurkish journal of haematology : official journal of Turkish Society of Haematology · 2023Article
- Psychometric evaluation of the Chinese version of the supportive care needs survey for caregivers of children with Paediatric cancer (SCNS-C-Ped-C).Nursing open · 2023Review
- Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundDespite the potential benefits of effective communication, telling a child that they have a life-threatening condition is one of the most daunting challenges. This study aimed to explore the information needs of children with leukemia from the perspectives of children and their parents at the time of diagnosis.
methodsWe conducted an exploratory qualitative study using semi-structured individual interviews with children diagnosed with leukemia between seven and 13 years old (n = 7) and their parents (n = 9). Children and parents' interview data were analyzed using thematic analysis.
resultsWe identified three themes for the information needs of children with leukemia, 1) beginning to cope, 2) avoiding disclosure - protecting child, and 3) informational support. The children and their parents needed to receive understandable information at the best time to cope with cancer. However, the children and parents expressed different views about children's information needs. The children needed clear information about the disease, treatment, hospitalization, and the benefits of hospitalization from the time of diagnosis. In contrast, the parents felt they should not tell their children about the disease if they were in shock by their child's cancer diagnosis. Moreover, the parents believed that information that would be incomprehensible to the child and distress should be avoided to protect their children.
conclusionsWhile the information needs of children with leukemia are varied, children and their parents need the information to cope with cancer. However, if the parents believe that the information would be distressful, they might manage communication with their children. Healthcare professionals should explore the motivations behind parents' attitudes against communication with children and confront conflict. Healthcare professionals also should communicate with the children and their parents to understand their information needs and respect children's views.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.