Evidence map›Paper›PMID 35831035›Full record

ArticleBMJ global health2022

Developing a global practice-based framework of person-centred care from primary data: a cross-national qualitative study with patients, caregivers and healthcare professionals.

Alessandra Giusti, Panate Pukrittayakamee, Ghadeer Alarja, Lindsay Farrant, Joy Hunter, Olona Mzimkulu, Liz Gwyther, Nokuzola Williams, Kamonporn Wannarit, Lana Abusalem and 11 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in BMJ global health, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 31 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
31citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

31 citing papers in PubMed, 1 synthesis or guideline pooled it.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

21 authors.

Alessandra GiustiCicely Saunders Institute of Palliative Care, Policy and Rehabilitation, King's College London, London, UK alessandra.giusti@kcl.ac.uk.ORCID 0000-0003-2667-1665
Panate PukrittayakameeFaculty of Medicine, Mahidol University, Siriraj Hospital, Bangkok, Thailand.
Ghadeer AlarjaCenter for Palliative & Cancer Care in Conflict (CPCCC), King Hussein Cancer Center, Amman, Jordan.
Lindsay FarrantSchool of Public Health and Family Medicine, University of Cape Town, Cape Town, Western Cape, South Africa.
Joy HunterSchool of Public Health and Family Medicine, University of Cape Town, Cape Town, Western Cape, South Africa.
Olona MzimkuluSchool of Public Health and Family Medicine, University of Cape Town, Cape Town, Western Cape, South Africa.
Liz GwytherSchool of Public Health and Family Medicine, University of Cape Town, Cape Town, Western Cape, South Africa.
Nokuzola WilliamsSchool of Public Health and Family Medicine, University of Cape Town, Cape Town, Western Cape, South Africa.
Kamonporn WannaritFaculty of Medicine, Mahidol University, Siriraj Hospital, Bangkok, Thailand.
Lana AbusalemCenter for Palliative & Cancer Care in Conflict (CPCCC), King Hussein Cancer Center, Amman, Jordan.ORCID 0000-0003-1591-9725
Sawsan AlajarmehCenter for Palliative & Cancer Care in Conflict (CPCCC), King Hussein Cancer Center, Amman, Jordan.
Waleed AlrjoubCenter for Palliative & Cancer Care in Conflict (CPCCC), King Hussein Cancer Center, Amman, Jordan.
Lakkana ThongchotFaculty of Medicine, Mahidol University, Siriraj Hospital, Bangkok, Thailand.
Satit JanwanishstapornFaculty of Medicine, Mahidol University, Siriraj Hospital, Bangkok, Thailand.ORCID 0000-0003-2474-4939
Adib EdilbiCenter for Palliative & Cancer Care in Conflict (CPCCC), King Hussein Cancer Center, Amman, Jordan.
Ruba Al-AniCenter for Palliative & Cancer Care in Conflict (CPCCC), King Hussein Cancer Center, Amman, Jordan.
Omar ShamiehCenter for Palliative & Cancer Care in Conflict (CPCCC), King Hussein Cancer Center, Amman, Jordan.
Ping GuoSchool of Nursing, Institute of Clinical Sciences, University of Birmingham, Birmingham, UK.ORCID 0000-0003-0979-7047
Kennedy Bashan NkhomaCicely Saunders Institute of Palliative Care, Policy and Rehabilitation, King's College London, London, UK.ORCID 0000-0002-2991-8160
Sridhar VenkatapuramKing's Global Health Institute, King's College London, London, UK.ORCID 0000-0003-3076-0783
Richard HardingCicely Saunders Institute of Palliative Care, Policy and Rehabilitation, King's College London, London, UK.ORCID 0000-0001-9653-8689

Funding

Department of Health
6 · The paper itself

Abstract

introductionPerson-centred care (PCC) is internationally recognised as a critical component of high-quality healthcare. However, PCC evolved in a few high-income countries and there are limited data exploring this concept across the vast majority of countries which are low- and middle-income. This study aimed to appraise and adapt a PCC model across three serious physical conditions in three middle-income countries and generate an evidence-based framework and recommendations for globally relevant PCC.

methodsCross-national, cross-sectional qualitative study. In depth, semistructured interviews conducted with: advanced cancer patients in Jordan (n=50), their caregivers (n=20) and healthcare professionals (HCPs) (n=20); chronic obstructive pulmonary disease patients in South Africa (n=22), their caregivers (n=19) and HCPs (n=22); heart failure patients in Thailand (n=14), their caregivers (n=10) and HCPs (n=12). Data were analysed using framework analysis. Santana

resultsThe findings both reveal specific practical actions that contribute towards delivering PCC and highlight new cross-national domains of person-centredness: interdependency and collectivism; bringing care into the home and community; equity and non-discrimination; addressing health and illness within the context of limited resources; and workforce well-being.

conclusionThe data suggest that PCC requires particular structural features of the healthcare system to be in place, such as professional education in PCC values and partnerships with community-based workers. These structures may better enable PCC processes, including tailored information sharing and providing genuine opportunities for patients to do the things that matter to them, such as making informed care decisions and sustaining social relationships. PCC must also accommodate a collectivist perspective and support the well-being of the workforce.

Indexed as

CaregiversPatient-Centered CareCross-Sectional StudiesDelivery of Health CareHumansQualitative ResearchHealth policyHealth services researchHealth systemsQualitative study

Identifiers

PMID35831035
PMCPMC9280875

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.