Evidence map›Paper›PMID 35829932›Full record

ArticleClinical rheumatology2022

Social networks as education strategies for indigenous patients with rheumatoid arthritis during COVID-19 pandemic. Are they useful?

Rosana Quintana, Sofia Fernandez, Lourdes Guggia, Martina Fay, Cecilia Camacho, Graciela Gomez, Jazmin Petrelli, Andrés Honeri, Viviana Arenas Solórzano, Ana Bensi and 4 more

Abstract read
PubMed Publisher
In one paragraph

Article in Clinical rheumatology, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
1.1field-weighted citation impact, top 21% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 9 citations in OpenAlex.

  1. Article
  2. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors at 4 institutions in 2 countries.

Rosana QuintanaCentro Regional de Enfermedades Autoinmunes y Reumáticas (GO-CREAR), Rosario, Santa Fe, Argentina. rosanaquintana@gmail.com.ORCID http://orcid.org/0000-0003-0643-2755
Sofia FernandezCEAPROS (Centro de Estudios Aplicados a Problemáticas Socio-Culturales), Facultad de Humanidades y Artes, Universidad Nacional de Rosario (UNR), Rosario, Santa Fe, Argentina.
Lourdes GuggiaCEAPROS (Centro de Estudios Aplicados a Problemáticas Socio-Culturales), Facultad de Humanidades y Artes, Universidad Nacional de Rosario (UNR), Rosario, Santa Fe, Argentina.
Martina FayCEAPROS (Centro de Estudios Aplicados a Problemáticas Socio-Culturales), Facultad de Humanidades y Artes, Universidad Nacional de Rosario (UNR), Rosario, Santa Fe, Argentina.
Cecilia CamachoCEAPROS (Centro de Estudios Aplicados a Problemáticas Socio-Culturales), Facultad de Humanidades y Artes, Universidad Nacional de Rosario (UNR), Rosario, Santa Fe, Argentina.
Graciela GomezCEAPROS (Centro de Estudios Aplicados a Problemáticas Socio-Culturales), Facultad de Humanidades y Artes, Universidad Nacional de Rosario (UNR), Rosario, Santa Fe, Argentina.
Jazmin PetrelliCEAPROS (Centro de Estudios Aplicados a Problemáticas Socio-Culturales), Facultad de Humanidades y Artes, Universidad Nacional de Rosario (UNR), Rosario, Santa Fe, Argentina.
Andrés HoneriCEAPROS (Centro de Estudios Aplicados a Problemáticas Socio-Culturales), Facultad de Humanidades y Artes, Universidad Nacional de Rosario (UNR), Rosario, Santa Fe, Argentina.
Viviana Arenas SolórzanoCEAPROS (Centro de Estudios Aplicados a Problemáticas Socio-Culturales), Facultad de Humanidades y Artes, Universidad Nacional de Rosario (UNR), Rosario, Santa Fe, Argentina.
Ana BensiCEAPROS (Centro de Estudios Aplicados a Problemáticas Socio-Culturales), Facultad de Humanidades y Artes, Universidad Nacional de Rosario (UNR), Rosario, Santa Fe, Argentina.
Maria Elena CalvoHospital 4 de junio "Dr. Ramón Carrillo", Ciudad de Presidencia Roque Sáenz Peña, Chaco, Argentina.
Ingris Pelaez-BallestasHospital General de México "Dr. Eduardo Liceaga", Ciudad de Mexico, México.
Marcela ValdataCEAPROS (Centro de Estudios Aplicados a Problemáticas Socio-Culturales), Facultad de Humanidades y Artes, Universidad Nacional de Rosario (UNR), Rosario, Santa Fe, Argentina.
Bernardo A Pons-EstelCEAPROS (Centro de Estudios Aplicados a Problemáticas Socio-Culturales), Facultad de Humanidades y Artes, Universidad Nacional de Rosario (UNR), Rosario, Santa Fe, Argentina.
National University of Rosario · ARHospital El Cruce · ARHospital General de México · MXHospital Provincial de Rosario · AR

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionThe use of online education strategies has been introduced as a tool to support health care in patients with rheumatic disease. However, it is important to consider the patient's sociocultural environment.

objectiveTo design and assessment of bilingual audiovisual material acceptability, by means of two social networks, for patients with rheumatoid arthritis (RA) in the qom community in Argentina.

methodsA qualitative study was performed in two stages: (1) audiovisual material design, development, and validation implementing a collaborative action research method. (2) Publishing of the material on two social networks at two different times. The selected topic was the coronavirus disease 2019 impact on patients with RA. A qualitative and quantitative data analysis was performed.

resultsForty subjects participated into the initial validation stage with a 70% acceptance rate. First, 28 subjects (70%) participated on Facebook and 25 (62.5%) joined the WhatsApp group. Then, the same number of subjects participated on Facebook, while only 45% of subjects participated on WhatsApp. Most of them participated using short phrases such as "I like it." The 60% of the participants played the videos. However, less than 10% shared them. Videos in Spanish were the once most shared. Participation dramatically fell during the second time, and 40% of the WhatsApp subjects never participated.

conclusionThe strategies developed for this indigenous community were of no utility, probably because of socio-cultural, economic, and digital barriers. They should be designed and implemented identifying the target group and its environment. Key Points • Online education strategies should be designed with cultural sensitivity. • Technological barriers make digital inequality visible in vulnerable groups. • Educational interventions should have a collaborative design and they should be created together with the communities. • The COVID-19 pandemic has deepened inequalities in the health care and follow-up of patients with rheumatic diseases, especially between most socially and economically disadvantaged groups.

Indexed as

Arthritis, RheumatoidCOVID-19Rheumatic DiseasesHumansPandemicsQualitative ResearchSocial NetworkingAudiovisual educational materialDigital inequalityMultidisciplinary approachPatient health educationQom population

Identifiers

PMID35829932
OpenAlexW4285084731

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.