Evidence map›Paper›PMID 35818800›Full record

SynthesisAging & mental health2023

The early impacts of COVID-19 on unpaid carers of people living with dementia: part II of a mixed-methods systematic review.

Clarissa Giebel, Catherine V Talbot, Emily Wharton, Klara Lorenz-Dant, Aida Suárez-González, Jacqueline Cannon, Hilary Tetlow, Katarzyna M Lion, Jochen René Thyrian

Open access · bronzeAbstract readSystematic Review
In one paragraph

Synthesis in Aging & mental health, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.

0numbers the graph read from it
0cells of the map it votes in
11citing papers in PubMed
3.9field-weighted citation impact, top 7% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

11 citing papers in PubMed, 14 citations in OpenAlex.

  1. Article
  2. Article
  3. Article
  4. Article
  5. Article
  6. Article
  7. Review
  8. Social support services for dementia during the COVID-19 pandemic: A longitudinal survey exploring service adaptations in the United Kingdom.Health expectations : an international journal of public participation in health care and health policy · 2023
    Article
  9. Article
  10. Article
  11. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 9 institutions in 4 countries.

Clarissa GiebelDepartment of Primary Care & Mental Health, University of Liverpool, Liverpool, UK.ORCID 0000-0002-0746-0566
Catherine V TalbotFaculty of Science & Technology, Bournemouth University, Poole, UK.
Emily WhartonNIHR ARC NWC, Liverpool, UK.
Klara Lorenz-DantCare Policy and Evaluation Centre, Department of Health Policy, London School of Economics and Political Science, London, UK.
Aida Suárez-GonzálezUCL Queen Square Institute of Neurology, Dementia Research Centre, London, UK.
Jacqueline CannonLewy Body Society, Wigan, UK.
Hilary TetlowNIHR ARC NWC, Liverpool, UK.
Katarzyna M LionMenzies Health Institute Queensland, Griffith University, Brisbane, Australia.
Jochen René ThyrianGerman Centre for Neurodegenerative Diseases (DZNE), Rostock/Greifswald, Greifswald, Germany.
Bournemouth University · GBGriffith University · AULiverpool College · GBLiverpool John Moores University · GBLondon School of Economics and Political Science · GBThe Lewy Body Society · GBUK Dementia Research Institute · GBUniversitätsmedizin Greifswald · DEUniversity of Liverpool · GB

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectivesWith a lack of existing comprehensive reviews, the aim of this mixed-method systematic review was to synthesise the evidence on the early impacts of the pandemic on unpaid dementia carers across the globe.

methodsThis review was registered on PROSPERO [CDR42021248050]. PubMed, CINAHL, Embase, Scopus and Web of Science were searched from 2020 to July 2021. Studies were included if they reported on the different impacts of the pandemic on unpaid dementia carers aged 18+, with papers published in English, German, Polish, or Spanish. A number of research team members were involved in the selection of studies following PRISMA guidance.

resultsThirty-six studies (43 papers) from 18 countries reported on the early impact of the pandemic on unpaid dementia carers. Impacts were noted on accessing care and support; carer burden; and well-being. Studies found that carers had limited access to care and support services, increased workload, enhanced feelings of social isolation, and reduced wellbeing. Specifically, reductions in access to care and support increased carer's unpaid caring tasks, removing any opportunities for temporary respite, and thus further increasing carer burden and reducing mental well-being in many.

conclusionsThe needs of unpaid dementia carers appear to have increased during the pandemic, without adequate support provided. Policy initiatives need to enable better mental health support and formal care provision for unpaid carers and their relatives with dementia, whilst future research needs to explore the long-term implications of carer needs in light of care home restrictions and care delivery.

Indexed as

COVID-19DementiaCaregiversHumansMental HealthPalliative Carecarer burdencarersCOVID-19Dementiamental healthsocial care

Identifiers

PMID35818800
PMCPMC11996064
OpenAlexW4285026914

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.