Evidence map›Paper›PMID 35817560›Full record

ArticleChild: care, health and development2023

'I bring her up with love:' Perspectives of caregivers of children with neurodevelopmental delays in western Kenya.

Yi Yan Heng, Amira Nafiseh, Eren Oyungu, Ananda Roselyne Ombitsa, Carolyne Cherop, Megan S McHenry

Open access · hybridAbstract read
In one paragraph

Article in Child: care, health and development, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
0.8field-weighted citation impact, top 29% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 6 citations in OpenAlex.

  1. Article
  2. Article
  3. Pepea Pamoja:Child: care, health and development · 2024
    Article
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 3 institutions in 2 countries.

Yi Yan HengDepartment of Pediatrics, Indiana University School of Medicine, Indianapolis, Indiana, USA.
Amira NafisehDepartment of Pediatrics, Indiana University School of Medicine, Indianapolis, Indiana, USA.
Eren OyunguDepartment of Medical Physiology, School of Medicine, College of Health Sciences, Moi University, Eldoret, Kenya.
Ananda Roselyne OmbitsaAcademic Model Providing Access to Healthcare, Eldoret, Kenya.
Carolyne CheropAcademic Model Providing Access to Healthcare, Eldoret, Kenya.
Megan S McHenryDepartment of Pediatrics, Indiana University School of Medicine, Indianapolis, Indiana, USA.ORCID 0000-0001-6753-0928
AMPATH · KEIndiana University School of MedicineMoi University · KE

Funding

Quality Assurance and Quality Control Project Management: Improving Submissions and Study Conduct in the Human Subjects Research Prior Approval ProcessUL1TR002529 · NCATS · INDIANA UNIVERSITY INDIANAPOLIS · PI MOE, SHARON M, WIEHE, SARAH ELIZABETH · 2018 to 2022
$27.2M
Neurodevelopmental screening in children born to HIV-infected mothers in KenyaK23MH116808 · NIMH · INDIANA UNIVERSITY INDIANAPOLIS · PI MCHENRY, MEGAN SONG · 2018 to 2021
$723k
NIH HHS UL1TR002529NIMH NIH HHS K23 MH116808
6 · The paper itself

Abstract

objectiveThis study aims to understand the challenges and perspectives of caregivers with neurodevelopmental delays (NDD) in rural Kenya.

methodsSemi-structured interviews and the Affiliate Stigma Scale were administered to the primary caregivers of children with NDDs recruited from the communities near Eldoret, Kenya. Constant comparison and triangulation methods were used to inductively develop relevant themes and concepts.

resultsSixteen caregivers participated. Challenges, which included hardships related to safety and supervision, challenging emotions and financial difficulties, were compounded by a lack of social support and community stigma towards these children. However, caregivers still felt deep love for their children, desired acceptance from the community and found sources of strength from faith and religious institutions.

conclusionThe study uncovered crucial insights into the perspectives of caregivers within this population and revealed a paucity of disability awareness and understanding within the community, possibly informing future programmes and intervention policies.

Indexed as

CaregiversLoveChildFemaleHumansKenyaSocial StigmaSocial Supportcaregiverschallengeschild developmentKenyalow- and middle-income countrylow-resourced settingsstigmasupport

Identifiers

PMID35817560
PMCPMC10084169
OpenAlexW4285040190

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.