Evidence map›Paper›PMID 35816905›Full record

ArticleJournal of pediatric nursing

Impact of COVID-19 pandemic on access to online therapeutic education programs for children with sickle cell disease.

Alizee Sterlin, Mariane de Montalembert, Melissa Taylor, Sandrine Mensah, Marie Vandaele, Agathe Lanzeray, Louise Poiraud, Slimane Allali

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of pediatric nursing. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Alizee SterlinRéseau Francilien de Soins des Enfants Drépanocytaires, Hôpital Necker-Enfants malades, et Agence Régionale de Santé Ile-de-France, Paris, France.
Mariane de MontalembertRéseau Francilien de Soins des Enfants Drépanocytaires, Hôpital Necker-Enfants malades, et Agence Régionale de Santé Ile-de-France, Paris, France.; Department of General Pediatrics and Pediatric Infectious Diseases, Reference Center for Sickle Cell Disease, Hôpital Necker-Enfants malades, Assistance Publique-Hôpitaux de Paris (AP-HP), Université de Paris, Paris, France. Electronic address: mariane.demontal@aphp.fr.
Melissa TaylorDepartment of General Pediatrics and Pediatric Infectious Diseases, Reference Center for Sickle Cell Disease, Hôpital Necker-Enfants malades, Assistance Publique-Hôpitaux de Paris (AP-HP), Université de Paris, Paris, France.
Sandrine MensahRéseau Francilien de Soins des Enfants Drépanocytaires, Hôpital Necker-Enfants malades, et Agence Régionale de Santé Ile-de-France, Paris, France.
Marie VandaeleRéseau Francilien de Soins des Enfants Drépanocytaires, Hôpital Necker-Enfants malades, et Agence Régionale de Santé Ile-de-France, Paris, France.
Agathe LanzerayRéseau Francilien de Soins des Enfants Drépanocytaires, Hôpital Necker-Enfants malades, et Agence Régionale de Santé Ile-de-France, Paris, France.; Unité Transversale d'Education Thérapeutique, Hôpital Necker Enfants Malades, Paris, France.
Louise PoiraudRéseau Francilien de Soins des Enfants Drépanocytaires, Hôpital Necker-Enfants malades, et Agence Régionale de Santé Ile-de-France, Paris, France.
Slimane AllaliRéseau Francilien de Soins des Enfants Drépanocytaires, Hôpital Necker-Enfants malades, et Agence Régionale de Santé Ile-de-France, Paris, France.; Department of General Pediatrics and Pediatric Infectious Diseases, Reference Center for Sickle Cell Disease, Hôpital Necker-Enfants malades, Assistance Publique-Hôpitaux de Paris (AP-HP), Université de Paris, Paris, France.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundSickle cell disease (SCD) is a lifelong disease for which outcomes may be influenced by patients' self-care knowledge. Therapeutic education (TPE) is a patient-centered teaching instrument based on patient's adaptative processes and needs. TPE was developed in the Paris area by a pediatric health network using interactive face-to-face meetings. The COVID-19 pandemic has impacted the TPE modalities by promoting online training. Our aims were to evaluate the accessibility of patients with SCD to online TPE.

methodsWe compared sessions of TPE before and after the onset of the pandemic: the number of sessions, performed face-to-face or online, individual or in a group. We also recorded the number of participants in each session and their age, school level, and department in France.

findingsWe observed an increase in the total number of trained children, but participation varied greatly according to the geographical area of residence, with a decrease from 22.4% to 4.9% in the proportion of attendees living in the most socio-economically deprived French departments. DISCUSSION: Online TPE is feasible for patients with SCD but with unequal access according to socio-economic status. APPLICATION TO PRACTICE: Access to TPE needs to be improved for patients living in socially disadvantaged areas.

Indexed as

Anemia, Sickle CellCOVID-19Education, DistanceChildFranceHumansPandemicsChronic diseaseCOVID-19eHealthSelf-careSickle cell diseaseTherapeutic education

Identifiers

PMID35816905
PMCPMC9265241

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.