Evidence map›Paper›PMID 35808909›Full record

ArticleScandinavian journal of caring sciences2022

A survey study of family members' encounters with healthcare services within the care of older people, psychiatric care, palliative care and diabetes care.

Pardis Momeni, Kristofer Årestedt, Anette Alvariza, Elisabeth Winnberg, Ida Goliath, Åsa Kneck, Janeth Leksell, Mats Ewertzon

Abstract read
In one paragraph

Article in Scandinavian journal of caring sciences, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Pardis MomeniDepartment of Health Care Sciences, Ersta Sköndal Bräcke University College, Stockholm, Sweden.ORCID https://orcid.org/0000-0003-3150-0596
Kristofer ÅrestedtFaculty of Health and Life Sciences, Linnaeus University, Kalmar, Sweden.
Anette AlvarizaDepartment of Health Care Sciences, Ersta Sköndal Bräcke University College, Stockholm, Sweden.
Elisabeth WinnbergDepartment of Health Care Sciences, Ersta Sköndal Bräcke University College, Stockholm, Sweden.
Ida GoliathStockholm Gerontology Research Center, Stockholm, Sweden.
Åsa KneckDepartment of Health Care Sciences, Ersta Sköndal Bräcke University College, Stockholm, Sweden.
Janeth LeksellDepartment of Medical Sciences, Uppsala University, Uppsala, Sweden.
Mats EwertzonDepartment of Health Care Sciences, Ersta Sköndal Bräcke University College, Stockholm, Sweden.

Funding

Ersta Sköndal Bräcke University College
6 · The paper itself

Abstract

The aim of this study was to describe and compare family members' experiences of approach in encounters with healthcare professionals and possible feelings of alienation in the professional care within four care contexts: the care of older people, psychiatric care, palliative care and diabetes care. The design was an explorative cross-sectional survey study. Data were collected in Sweden using the Family Involvement and Alienation Questionnaire-Revised (FIAQ-R). It measures family members' experiences of the healthcare professionals' approach and the family members' feeling of alienation from the provision of professional care. A total of 1047 questionnaires were distributed to family members using convenient sampling method, of which 294 were included. Data were analysed using rank-based, non-parametric statistical methods. The results indicated that most respondents experienced a positive actual approach from the healthcare professionals. Many participants rated the importance of approach at a higher level than their actual experience. Participants in the context of diabetes care reported a more negative actual approach from the healthcare professionals than did participants in the other contexts and considered the healthcare professionals' approach towards them as being less important. The results for the entire group indicated that the participants felt a low level of alienation from the professional care. Participants in the context of the care of older people reported significantly lower level of feeling of being alienated than did participants in the contexts of psychiatric care and diabetes care. The differences between participants in diabetes care and other care contexts can possibly be explained by a more fully implemented self-care approach among the patients in diabetes care than in the other care contexts. Even though the results are quite positive, it is still important that nurses consider a family-centred approach to better adapt to the needs of both the family members and the patients.

Indexed as

Diabetes MellitusPalliative CareAgedCross-Sectional StudiesDelivery of Health CareFamilyHumansSurveys and Questionnairesalienationcare contextcross-sectionalencounterfamily membershealthcare servicesnext of kinself-reported

Identifiers

PMID35808909
PMCPMC9796367

What OpenQuestion holds

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LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.