ArticleThe journals of gerontology. Series B, Psychological sciences and social sciences2022
"Living Well" Trajectories Among Family Caregivers of People With Mild-to-Moderate Dementia in the IDEAL Cohort.
Article in The journals of gerontology. Series B, Psychological sciences and social sciences, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
9 citing papers in PubMed.
- Associations of objective and perceived social status with well-being in dyads of people with dementia and their caregivers: findings from the IDEAL programme.Social psychiatry and psychiatric epidemiology · 2026Article
- The moderating role of care duration in the relationship between caregiving competence and burden among family caregivers in hospice care.Frontiers in public health · 2026Article
- Development of a Mindfulness and Self-compassion (MASC) Stress Reduction Program for Caregivers of Persons With Dementia With Behavioral Symptoms.The Gerontologist · 2025Article
- Navigating the coronavirus pandemic two years on: Experiences of carers of people with dementia from the British IDEAL cohort.International journal of care and caring · 2024Article
- Longitudinal Trajectories of Stress and Positive Aspects of Dementia Caregiving: Findings From the IDEAL Programme.The journals of gerontology. Series B, Psychological sciences and social sciences · 2024Article
- Differences in trajectories of quality of life according to type of dementia: 6-year longitudinal findings from the IDEAL programme.BMC medicine · 2024Article
- Trajectories of negative and positive experiences of caregiving for older adults with severe dementia: application of group-based multi-trajectory modelling.BMC geriatrics · 2024Article
- Long-term impact of the COVID-19 pandemic on the quality of life of people with dementia and their family carers.Age and ageing · 2024Article
- Article
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Authors and funding
18 authors.
Funding
Abstract
objectivesUnderstanding whether and how caregivers' capability to "live well" changes over time, and the factors associated with change, could help target effective caregiver support.
methodsWe analyzed 3 time points (12 months apart) of Improving the experience of Dementia and Enhancing Active Life (IDEAL) cohort data from coresident spouse caregivers of community-dwelling individuals who had mild-to-moderate dementia at baseline, using latent growth and growth mixture models. Capability to "live well" was derived from measures of quality of life, well-being, and satisfaction with life.
resultsData from 995 spouse caregivers at Time 1, 780 at Time 2, and 601 at Time 3 were included. The mean "living well" score decreased slightly over time. We identified 3 classes of caregivers: one with higher baseline scores declining slightly over time (Stable; 66.8%), one with low baseline scores remaining stable (Lower Stable; 26.0%), and one with higher baseline scores showing marked decline (Declining; 7.2%). Scores on baseline measures differentiated the Lower Stable, but not the Declining, from the Stable class. Longitudinally, the Declining class was associated with care recipient cognitive decline and increasing hours providing care, as well as caregiver stress and depression. Findings were similar when caregivers with other kin relationships were included. DISCUSSION: The findings indicate the importance of prompt identification of, and support for, caregivers at risk of the declining capability to "live well" and may assist in identifying those caregivers who could benefit most from targeted support.
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