ArticleInternational journal of behavioral medicine2023
Self-advocacy Behaviors and Needs in Women with Advanced Cancer: Assessment and Differences by Patient Characteristics.
Article in International journal of behavioral medicine, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.
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Who cites it
12 citing papers in PubMed.
- What's on your mind? A qualitative analysis of concerns and self-management strategies among older adults with advanced cancer.Journal of geriatric oncology · 2025Trial
- The relationship between self-efficacy and self-advocacy among young and middle-aged Chinese breast cancer patients: the mediating effect of health literacy.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Identifying the heterogeneity of self-advocacy in patients with gynecological cancer: a latent class profile analysis.BMC women's health · 2026Article
- Self-Advocacy in cancer Survivors and Influencing Factors: a Systematic Review.International journal of behavioral medicine · 2026Review
- Identifying the heterogeneity of self-advocacy in Chinese patients with breast cancer using latent profile analysis and symptom networks.Asia-Pacific journal of oncology nursing · 2025Article
- Listening to patients: A qualitative study on diagnostic delay, coping strategies and stigma in early-onset colorectal cancer.Colorectal disease : the official journal of the Association of Coloproctology of Great Britain and Ireland · 2025Article
- Influencing factors of self-advocacy in stroke patients from multiple perspectives: a qualitative study.BMC health services research · 2025Article
- Psychometric evaluation of the Chinese version of the Patient Self-Advocacy Scale using classical test theory and item response theory.Scientific reports · 2025Observational
- Evaluation of the multifaceted role of social media in cancer patient care.Ecancermedicalscience · 2025Article
- Cancer advocacy, barriers and associated factors among adolescents and young adults with cancer in Africa.Ecancermedicalscience · 2025Article
- Describing Self-Advocacy in Underrepresented Women With Advanced Cancer.Oncology nursing forum · 2023Article
- The Role of Social Media and Breast Cancer: How Does It Impact Patients?Breast care (Basel, Switzerland) · 2023Article
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Authors and funding
5 authors.
Funding
Abstract
backgroundSelf-advocacy skills allow individuals with cancer to overcome challenges related to their health, care, and well-being. Understanding the self-advocacy behaviors and needs of individuals with cancer is critical to addressing the lack of evidence-based self-advocacy interventions. The aims of this study are to describe (1) self-advocacy behaviors and needs of women with advanced cancer and (2) associations between self-advocacy and sociodemographic, cancer, and patient-reported outcomes.
methodsWe analyzed cross-sectional data from a clinical trial among women within 3 months of a metastatic breast or stage III or IV gynecologic cancer diagnosis. Descriptive and correlational statistics and tests of group difference were calculated for measures of self-advocacy (Female Self-Advocacy in Cancer Survivorship Scale), sociodemographic characteristics, quality of life (FACT-G), symptom burden (M.D. Anderson Symptom Inventory), and mood (Hospital Anxiety and Depression Scale).
resultsParticipants (N = 78) reported self-advocacy behaviors including making decisions based on their priorities, asking questions to their healthcare providers, and comparing their experiences to others' experiences. Self-advocacy needs focused on finding health information and talking with healthcare providers. Self-advocacy behaviors and needs did not differ by participants' sociodemographic characteristics or mood. Higher self-advocacy behaviors were associated with higher quality of life (p ≤ .01) and lower symptom severity (p < .05) with a trend for cancer recurrence (p = .05).
conclusionsWomen with advanced cancer report engaging in self-advocacy behaviors and these are associated with higher quality of life and lower symptom burden. Future research should determine if self-advocacy behaviors and needs change over time and how patient characteristics impact self-advocacy behaviors and needs.
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