ArticleAutism : the international journal of research and practice2023
'The key to this is not so much the technology. It's the individual who is using the technology': Perspectives on telehealth delivery for autistic adults during the COVID-19 pandemic.
Article in Autism : the international journal of research and practice, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 1 of them a synthesis that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
15 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Telehealth as a Psychological Intervention for Caregivers of Children with Neurodevelopmental Disorders: A Systematic Review with Effect Sizes.Journal of autism and developmental disorders · 2025Pooled it
- Enhancing inclusion of neurodivergent participants in medical research: an intersectional inclusion-by-design approach.Frontiers in medicine · 2026Article
- Navigating the Complex Landscape of Autism Spectrum Disorder: Challenges and Opportunities in Diagnosis, Treatment, and Supports.Current pharmaceutical design · 2026Review
- Effectiveness of a Therapist-Managed Video-Modeling Smartphone Application for Self-Care Training for Children With Autism and Their Parents: A Randomized Controlled Trial.Journal of autism and developmental disorders · 2025Article
- Autism Assessment From Home: Piloting a Brief, Remote Autism Observation for Children.Journal of autism and developmental disorders · 2025Article
- Telemedicine Experiences of Adults with Intellectual and/or Developmental Disabilities During the COVID-19 Pandemic: Lessons for Future Accessibility.Journal of general internal medicine · 2025Article
- 'If I Don't Have My Support Worker in the Room…': A Multi-perspective Mixed Methods Study of Remote Daily Living Support for Neurodivergent Young Adults.Journal of autism and developmental disorders · 2025Article
- Article
- Telepsychiatry, access, and equity: accelerating mental health care for rural and low-income youth.Frontiers in public health · 2025Article
- Innovative Digital Phenotyping Method to Assess Body Representations in Autistic Adults: A Perspective on Multisensor Evaluation.Sensors (Basel, Switzerland) · 2024Article
- How healthcare systems are experienced by autistic adults in the United Kingdom: A meta-ethnography.Autism : the international journal of research and practice · 2024Review
- Provider attitudes toward evidence-based practice in autism: a mini-review.Frontiers in child and adolescent psychiatry · 2024Review
- Lockdown Experiences and Views on Future Research Participation of Autistic Adults in the UK During the First 6 Months of the COVID-19 Pandemic.Autism in adulthood · 2023Article
- Impact of the COVID-19 Pandemic on Autistic Adults: a Scoping Review.Current developmental disorders reports · 2023Article
- Virtual group-based mindfulness program for autistic women: A feasibility study.Women's health (London, England)Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
lay abstractThe COVID-19 pandemic meant that a lot of healthcare services had to move online, such as to video-calls, or to telephone. However, not many studies have looked at how autistic adults feel about this kind of service delivery. It is important to know this, as autistic people may have poorer health than non-autistic people, and they may also struggle to access services more than non-autistic people. This study asked 11 autistic adults (aged 27-67 years), seven family members/carers (aged 44-75) reporting about autistic adults and six service providers about their experiences of accessing or providing a telehealth service. These experiences were collected through interviews, which were then analysed through thematic analysis. Two main themes were: technology aids communication and access - except when it doesn't, and in/flexibility. The themes pointed out some positive aspects of telehealth delivery, including improved communication and decreased stress. The themes also pointed out negative aspects of telehealth, such as increased rigidity of the healthcare system, amplifying pre-existing barriers. Because autistic people have many barriers to accessing healthcare, this study encourages researchers and healthcare providers to think about how such barriers could be addressed through telehealth, and about the possible limitations of telehealth for some autistic people.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.