Observational studyJournal of medical Internet research2022
Patient-Reported Outcome and Experience Measures in Perinatal Care to Guide Clinical Practice: Prospective Observational Study.
Observational study in Journal of medical Internet research, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.
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Who cites it
15 citing papers in PubMed, 39 citations in OpenAlex.
- Temporal-spatial trends in childbirth in Ontario, Canada.PloS one · 2026Article
- Article
- The maternal and newborn health eCohort to track longitudinal care quality: study protocol and survey development.Global health action · 2024Article
- Quality of care at childbirth during the COVID-19 pandemic in Belgium: a cross-sectional study based on WHO standards.BMJ open · 2024Observational
- Roles of different organizations in implementing patient-reported measures in routine maternity care in Finland.Journal of patient-reported outcomes · 2024Article
- The role of patient-reported experiences in disclosing genetic prenatal testing: Findings from a large-scale survey on pregnant women.European journal of obstetrics & gynecology and reproductive biology: X · 2024Article
- A decade of change towards Value-Based Health Care at a Dutch University Hospital: a complexity-informed process study.Health research policy and systems · 2024Article
- Psychometric properties of the maternal breastfeeding evaluation scale: a confirmatory factor analysis.BMC pregnancy and childbirth · 2024Observational
- Introducing standard patient-reported measures (PRMs) into routine maternity care: A pre-implementation qualitative study on women's perspectives in Finland.BMC health services research · 2023Article
- Article
- PROMs and PREMs in routine perinatal care: mixed methods evaluation of their implementation into integrated obstetric care networks.Journal of patient-reported outcomes · 2023Article
- Patient-reported outcome and experience measures for quality improvement in pregnancy and childbirth care: a retrospective cohort study.BMJ open quality · 2023Article
- Patient-Reported Outcome on Quality of Life and Pain after Revision Arthroplasty for Periprosthetic Joint Infection: A Cross-Sectional Study.Journal of clinical medicine · 2022Article
- Reconfiguring Care Practices Through Technology-Supported Services: Pathways to Outpatient Satisfaction in Urban and Rural Public Hospitals.Inquiry : a journal of medical care organization, provision and financingArticle
- Quality Improvement with Outcome Data in Integrated Obstetric Care Networks: Evaluating Collaboration and Learning Across Organizational Boundaries with an Action Research Approach.International journal of integrated careArticle
Corrections and comments
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Authors and funding
8 authors at 3 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe International Consortium for Health Outcomes Measurement has published a set of patient-centered outcome measures for pregnancy and childbirth (PCB set), including patient-reported outcome measures (PROMs) and patient-reported experience measures (PREMs). To establish value-based pregnancy and childbirth care, the PCB set was implemented in the Netherlands, using the outcomes on the patient level for shared decision-making and on an aggregated level for quality improvement.
objectiveThis study aims to report first outcomes, experiences, and practice insights of implementing the PCB set in clinical practice.
methodsIn total, 7 obstetric care networks across the Netherlands, each consisting of 1 or 2 hospitals and multiple community midwifery practices (ranging in number from 2 to 18), implemented the PROM and PREM domains of the PCB set as part of clinical routine. This observational study included all women participating in the clinical project. PROMs and PREMs were assessed with questionnaires at 5 time points: 2 during pregnancy and 3 post partum. Clinical threshold values (alerts) supported care professionals interpreting the answers, indicating possibly alarming outcomes per domain. Data collection took place from February 2020 to September 2021. Data analysis included missing (pattern) analysis, sum scores, alert rates, and sensitivity analysis.
resultsIn total, 1923 questionnaires were collected across the 5 time points: 816 (42.43%) at T1 (first trimester), 793 (41.23%) at T2 (early third trimester), 125 (6.5%) at T3 (maternity week), 170 (8.84%) at T4 (6 weeks post partum), and 19 (1%) at T5 (6 months post partum). Of these, 84% (1615/1923) were filled out completely. Missing items per domain ranged from 0% to 13%, with the highest missing rates for depression, pain with intercourse, and experience with pain relief at birth. No notable missing patterns were found. For the PROM domains, relatively high alert rates were found both in pregnancy and post partum for incontinence (469/1798, 26.08%), pain with intercourse (229/1005, 22.79%), breastfeeding self-efficacy (175/765, 22.88%), and mother-child bonding (122/288, 42.36%). Regarding the PREM domains, the highest alert rates were found for birth experience (37/170, 21.76%), shared decision-making (101/982, 10.29%), and discussing pain relief ante partum (310/793, 39.09%). Some domains showed very little clinical variation; for example, role of the mother and satisfaction with care.
conclusionsThe PCB set is a useful tool to assess patient-reported outcomes and experiences that need to be addressed over the whole course of pregnancy and childbirth. Our results provide opportunities to improve and personalize perinatal care. Furthermore, we could propose several recommendations regarding methods and timeline of measurements based on our findings. This study supports the implementation of the PCB set in clinical practice, thereby advancing the transformation toward patient-centered, value-based health care for pregnancy and childbirth.
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