Evidence map›Paper›PMID 35787158›Full record

ReviewChronic illness2023

Illness conversations: Self-disclosure among children and youth with chronic illnesses.

Tharanni Pathmalingam, Fiona J Moola, Roberta L Woodgate

Open access · hybridAbstract readReview
In one paragraph

Review in Chronic illness, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed, 1 pooled it
3.4field-weighted citation impact, top 8% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 1 synthesis or guideline pooled it, 11 citations in OpenAlex.

  1. Guideline
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors at 3 institutions in 1 country.

Tharanni PathmalingamSchool of Early Childhood Studies, Toronto Metropolitan University, Toronto, Canada.ORCID 0000-0003-2454-083X
Fiona J MoolaSchool of Early Childhood Studies, Faculty of Community Services, Toronto Metropolitan University, Toronto, Canada.
Roberta L WoodgateRady Faculty of Health Sciences, College of Nursing, University of Manitoba, Winnipeg, Canada.ORCID 0000-0002-7176-2390
Toronto Metropolitan University · CAUniversity of Manitoba · CAUniversity of Toronto · CA

Funding

CIHR 950-231845
6 · The paper itself

Abstract

objectiveIllness disclosure refers to when individuals with chronic illnesses make decisions to tell others about their disease. There is a lack of research on the complexity of disclosure among children and youth with chronic illnesses. We conducted a review of the literature to understand the process of disclosure among children and youth with chronic illnesses in the context of peer-based relationships.

methodsA narrative review was completed using three databases. The search yielded 11 articles that utilized various research designs.

resultsMost of the literature was qualitative in nature. Most children and youth engaged in non-disclosure and concealment which is born out of fears of discrimination. Fewer children and youth engaged in unplanned disclosure, passive disclosure, partial disclosure, and open disclosure. Children and youth carefully consider who they are disclosing to and perceptions about other peoples' responses strongly impact disclosure. Children and youth disclose verbally, behaviorally, and in written form. Disclosure is associated with both positive and negative effects, such as confidence, self-advocacy, and distress. DISCUSSION: Health providers and researchers should critically support disclosure and empower children and youth with the resources they need to be agents in their own disclosure decisions.

Indexed as

CommunicationDisclosureAdolescentChildChronic DiseaseHumansTruth Disclosurechildrenchronic illnessdisclosureyouth

Identifiers

PMID35787158
PMCPMC10515452
OpenAlexW4283829441

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.