ArticleAlzheimer's & dementia (New York, N. Y.)2022
Dementia patient and caregiver relevant outcomes currently being reported by adult day service centers in the United States.
Article in Alzheimer's & dementia (New York, N. Y.), 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
7 citing papers in PubMed.
- Advancing the Evidence Base for Adult Day Services: A New Five-Year Research Agenda for 2026-2031.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2026Article
- "We feel like a family here": person-centered outcomes of adult day services use from the voices of people living with dementia and their caregivers.BMC health services research · 2025Article
- Barriers in motion: a multi-methods approach to exploring physical activity, physical function, and program challenges in adult day services.Frontiers in public health · 2025Article
- Caregiver Experiences with Dementia-Related Feeding/Eating Difficulties.Healthcare (Basel, Switzerland) · 2024Article
- Adult day services: a potential antidote to social isolation and loneliness in marginalized older adults.Frontiers in public health · 2024Article
- Dementia patient and caregiver relevant outcomes currently being reported by adult day service centers in the United States.Alzheimer's & dementia (New York, N. Y.) · 2022Article
- Identifying Person-Centered Outcome Measures for Use in Adult Day Services: An E-Delphi Consensus Study.Sage open agingArticle
Corrections and comments
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Authors and funding
4 authors.
Funding
Abstract
Background: Approximately one third of adults in adult day services (ADS) centers have Alzheimer's disease (AD) and AD-related dementias (ADRD). Understanding of the impact and effectiveness of ADS on persons living with dementia (PLWD) is limited by a lack of patient and caregiver relevant outcomes (PCRO) data. We identified PCROs collected at ADS sites in states that mandate serial data collection and examined the degree to which these data align with established Dementia Care Practice Recommendations (DCPR) and PCROs used in other areas of long-term care. Methods: We conducted an item analysis of regulatory forms used by ADS. Consistent with the methodology used by the Imbedded Pragmatic AD/ADRD Clinical Trials (IMPACT) Collaboratory for PCROs collected in other long-term care settings, we created a matrix informed by DCPR. We matched each item in regulatory forms reflecting a PCRO to one of the seven DCPR domains as well as to the 53 PCROs from other long-term care sectors. Results: Ten states routinely collect outcome data in ADS. Among these, 80% assess cognitive function. All 10 states capture PLWD's ability to complete activities of daily living. Presence and frequency of behavioral symptoms were collected by 80% of states. Very few or, in some cases, none of the 10 states, collected PCROs related to care planning and coordination, education, social support, and/or family caregiver burden and support. Discussion: Lack of standardized collection of PCROs hampers researchers' understanding of ADS. The vast majority of PCROs collected center on participants' physical health; conversely, data on socialization, social support, and caregiver well-being, which are purportedly the most impactful services offered by ADS centers, are rarely collected. ADS would be well served to focus on these outcome domains as the resulting data could paint a more complete picture of the holistic impact of ADS on PLWD and their caregivers.
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