Evidence map›Paper›PMID 35778694›Full record

ArticleBMC geriatrics2022

Building a new life: a qualitative study of how family carers deal with significant changes.

Wendy Duggleby, Hannah M O'Rourke, Pamela Baxter, Cheryl Nekolaichuk, Genevieve Thompson, Shelley Peacock, Sunita Ghosh, Jayna Holroyd-Leduc, Carrie McAiney, Véronique Dubé and 3 more

Open access · goldAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in BMC geriatrics, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
0.8field-weighted citation impact, top 21% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed, 2 citations in OpenAlex.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors at 8 institutions in 1 country.

Wendy DugglebyFaculty of Nursing University of Alberta, 4-141 ECHA, 11405 87th Ave, Edmonton, AB, T6G 1C9, Canada. Wendy.duggleby@ualberta.ca.
Hannah M O'RourkeFaculty of Nursing University of Alberta, 4-141 ECHA, 11405 87th Ave, Edmonton, AB, T6G 1C9, Canada.
Pamela BaxterFaculty of Health Sciences, McMaster University, 1280 Main St. W, Hamilton, ON, L8S4K1, Canada.
Cheryl NekolaichukDepartment of Oncology, Faculty of Medicine and Dentistry, University of Alberta, Edmonton, AB, T6L 0A3, Canada.
Genevieve ThompsonCollege of Nursing, University of Manitoba, 89 Curry Place, Winnipeg, MB, R3T 2N2, Canada.
Shelley PeacockCollege of Nursing, University of Saskatchewan, 104 Clinic Place, Saskatoon, SK, S7N 2Z4, Canada.
Sunita GhoshAlberta Health Services-Cancer Control Alberta, Department of Medical Oncology, University of Alberta, 11560 University Ave, Edmonton, AB, T6G 1Z2, Canada.
Jayna Holroyd-LeducDepartment of Medicine, Cumming School of Medicine, University of Calgary, 1403 29th Street NW, Calgary, AB, T2N 4W4, Canada.
Carrie McAineySchlegel Research Chair in Dementia, Schlegel-UW Research Institute for Aging, Waterloo, Canada.
Véronique DubéChairholder Marguerite-d'Youville Research Chair, Faculty of Nursing, University of Montreal, P.O. Box 6128, Centre-ville Station, Montreal, QC, H3C 3J7, Canada.
Jennifer SwindleFaculty of Nursing, University of Alberta, Level 3 ECHA, 11405 87 Avenue, Edmonton, Alberta, T6G 1C9, Canada.
Madeleine Pagnucco-RenaudFaculty of Nursing University of Alberta, 4-005A, ECHA, 11405 87th Ave, Edmonton, AB, T6G 1C9, Canada.
Samina SanaFaculty of Nursing, School of Public Health, University of Alberta, Edmonton, Canada.
University of Alberta · CAAlberta Health Services · CAMcMaster University · CAResearch Institute for Aging · CAUniversité de Montréal · CAUniversity of Calgary · CAUniversity of Manitoba · CAUniversity of Saskatchewan · CA

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundFamily carers of persons living with dementia who are residing in long term care (LTC), often experience significant changes in their roles and relationships which affects mental and physical health. Research has focused on describing the carers' experience, but not on how they deal with these changes or their perceptions of support needs. The purpose of this study was to explore how family carers of persons living with dementia residing in LTC deal with significant changes and to understand how best to support these carers.

methodsEight face-to-face audio-recorded focus group interviews were conducted with 45 participants from September 2019 to January 2020, as part of a larger study aimed at guiding the adaptation of an online toolkit to support family carers of persons living with dementia residing in LTC. Applied thematic analysis was used to analyze the focus group data. FINDINGS/

resultsCarers dealt with the significant changes they experienced through the process of "building a new life" consisting of two sub-processes: a) building new relationships (with their family member, LTC staff and others outside of LTC), and b) finding space for themselves (sharing of care and finding balance). Understanding dementia, support from others (staff, family and friends), connecting with resources, and being included in care decisions helped carers build a new life.

conclusionThe process of building a new life describes the ways that family carers deal with the life-altering changes they experienced when a family member is admitted to LTC. Carers may be supported in building their new life, by providing them with information about dementia and how to relate to staff and their family member living with dementia. The quality of care being provided and the LTC environment may also play an important role in how carers deal with the significant changes they experience.

Indexed as

CaregiversDementiaFamilyFocus GroupsHumansQualitative ResearchDementiaFamily caregivingNursing homesQualitative

Identifiers

PMID35778694
PMCPMC9248114
OpenAlexW4283738957

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.