Evidence map›Paper›PMID 35777872›Full record

ArticleBMJ open2022

Feedback of aggregate patient-reported outcomes (PROs) data to clinicians and hospital end users: findings from an Australian codesign workshop process.

Olivia Francis Ryan, Shaun L Hancock, Violet Marion, Paulette Kelly, Monique F Kilkenny, Benjamin Clissold, Penina Gunzburg, Shae Cooke, Lauren Guy, Lauren Sanders and 2 more

Abstract read
In one paragraph

Article in BMJ open, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Olivia Francis RyanPublic Health: Stroke Division, Florey Institute of Neuroscience and Mental Health-Austin Campus, Heidelberg, Victoria, Australia.ORCID 0000-0003-4977-6742
Shaun L HancockPublic Health: Stroke Division, Florey Institute of Neuroscience and Mental Health-Austin Campus, Heidelberg, Victoria, Australia.ORCID 0000-0002-2015-2752
Violet MarionPublic Health: Stroke Division, Florey Institute of Neuroscience and Mental Health-Austin Campus, Heidelberg, Victoria, Australia.
Paulette KellyVictorian Agency for Health Information, Victoria Department of Health and Human Services, Melbourne, Victoria, Australia.
Monique F KilkennyPublic Health: Stroke Division, Florey Institute of Neuroscience and Mental Health-Austin Campus, Heidelberg, Victoria, Australia.ORCID 0000-0002-3375-287X
Benjamin ClissoldNeurosciences Department, Monash Health, Clayton, Victoria, Australia.
Penina GunzburgPhysiotherapy Department, Alfred Health, Melbourne, Victoria, Australia.
Shae CookeDepartment of Physiotherapy, Eastern Health, Box Hill, Victoria, Australia.
Lauren GuyCommunity Based Rehabilitation, Sunshine Hospital, Saint Albans, Victoria, Australia.
Lauren SandersDepartment of Neurosciences, St Vincent's Hospital Melbourne Pty Ltd, Fitzroy, Victoria, Australia.
Sibilah BreenPublic Health: Stroke Division, Florey Institute of Neuroscience and Mental Health-Austin Campus, Heidelberg, Victoria, Australia.
Dominique A CadilhacPublic Health: Stroke Division, Florey Institute of Neuroscience and Mental Health-Austin Campus, Heidelberg, Victoria, Australia dominique.cadilhac@monash.edu.ORCID 0000-0001-8162-682X

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectivesPatient-reported outcomes (PROs) are increasingly used to measure the patient's perspective of their outcomes following healthcare interventions. The aim of this study was to determine the preferred formats for reporting service-level PROs data to clinicians, researchers and managers to support greater utility of these data to improve healthcare and patient outcomes.

settingHealthcare professionals receiving PRO data feedback at the health service level.

participantsAn interdisciplinary Project Working Group comprised of clinicians participated in three workshops to codesign reporting templates of summarised PRO data (modified Rankin Scale, EuroQol Five Dimension Descriptive System, EuroQol Visual Analogue Scale and Hospital Anxiety and Depression Scale) using a modified Delphi process. An electronic survey was then distributed to short list the preferred templates among a broad sample of clinical end users. A final workshop was undertaken with the Project Working Group to review results and reach consensus on the final templates. PRIMARY AND SECONDARY OUTCOME MEASURES: The recommendation of preferred PRO summary data feedback templates and guiding principles for reporting aggregate PRO data to clinicians was the primary outcome. A secondary outcome was the identification of perceived barriers and enablers to the use of PRO data in hospitals. For each outcome measure, quantitative and qualitative data were summarised.

results31 Working Group members (19 stroke, 2 psychology, 1 pharmacy, 9 researchers) participated in the workshops, where 25/55 templates were shortlisted for wider assessment. The survey was completed by 114 end users. Strongest preferences were identified for bar charts (37/82 votes, 45%) and stacked bar charts (37/91 votes, 41%). At the final workshop, recommendations to enhance communication of PROs data for comparing health service performance were made including tailoring feedback to professional roles and use of case-mix adjustment to ensure fair comparisons.

conclusionsOur research provides guidance on PROs reporting for optimising data interpretation and comparing hospital performance.

Indexed as

HospitalsPatient Reported Outcome MeasuresAustraliaFeedbackHealth FacilitiesHumansepidemiologyhealth & safetypublic healthquality in health carestroke

Identifiers

PMID35777872
PMCPMC9252210

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.