Evidence map›Paper›PMID 35776093›Full record

ArticleThe journal of spinal cord medicine2024

Pediatric health and life domain priorities: A national survey of people with spinal cord injury and their parents and caregivers.

Marta Ríos-León, Bashak Onal, Juan Carlos Arango-Lasprilla, Marika Augutis, Nora Civicos-Sanchez, Allison Graham, Erin Hayes Kelly, Elisa López-Dolado, Anke Scheel-Sailer, Patricia Subiñas-Medina and 2 more

Open access · greenAbstract read
In one paragraph

Article in The journal of spinal cord medicine, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
0.4field-weighted citation impact, top 39% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 3 citations in OpenAlex.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors at 8 institutions in 5 countries.

Marta Ríos-LeónSensorimotor Function Group, Hospital Nacional de Parapléjicos (SESCAM), Toledo, Spain.ORCID 0000-0001-9110-139X
Bashak OnalNHS Buckinghamshire Clinical Commissioning Group, Aylesbury, UK.
Juan Carlos Arango-LasprillaBiocruces Bizkaia Health Research Institute, Barakaldo, Spain.
Marika AugutisDepartment of Neurobiology, Care Sciences and Society, Division of Neurogeriatrics, Karolinska Institutet, Stockholm, Sweden.
Nora Civicos-SanchezUnidad de Lesionados Medulares, Hospital de Cruces, Barakaldo, Spain.
Allison GrahamNational Spinal Injuries Centre, Stoke Mandeville Hospital, Buckinghamshire Healthcare NHS Trust, Aylesbury, Buckinghamshire, UK.
Erin Hayes KellyAmerican Academy of Pediatrics, Itasca, Illinois, USA.
Elisa López-DoladoRehabilitation Department, Hospital Nacional de Parapléjicos (SESCAM), Toledo, Spain.
Anke Scheel-SailerSwiss Paraplegic Centre, Nottwil, Switzerland.
Patricia Subiñas-MedinaServicio de Atención Temprana, Asociación de Familias de Personas con Discapacidad Intelectual y del Desarrollo (APANAS), Toledo, Spain.
PEPSCI Collaboration
Julian TaylorSensorimotor Function Group, Hospital Nacional de Parapléjicos (SESCAM), Toledo, Spain.
Servicio de Salud de Castilla La Mancha · ESUniversity of Oxford · GBAmerican Academy of Pediatrics · USBuckinghamshire Healthcare NHS Trust · GBHospital de Cruces · ESIkerbasque · ESKarolinska Institutet · SEUniversity of Lucerne · CH

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

CONTEXT/

objectiveNo information is available regarding priorities for pediatric-onset spinal cord injury (SCI). This study described the Health and Life (H&L) domain priorities of youth with pediatric-onset SCI and their parents/caregivers living in Spain.

designA cross-sectional survey.

settingTwo SCI rehabilitation centers.

participantsSixty participants, youth with pediatric-onset SCI (n = 26) and parents/caregivers (n = 34).

interventionsNot applicable. OUTCOME MEASURES: Median overall priorities calculated on the basis of importance, unhappiness, and research measured with a new survey of pediatric H&L domains and rated using a 5-point Likert Scale.

resultsA total of 60 surveys were received providing information on 35 individuals with SCI: 2-7-year-olds (25.7%), 8-12-year-olds (22.9%), 13-17-year-olds (31.4%), and 18-25-year-olds (20.0%). The top three overall H&L priorities reported by parents/caregivers of 2-12-year-olds were "parenthood expectations" (84%), "leg/foot movement" (83%), and "bladder" function (83%), compared to "dressing/undressing" (78%), "walking/ability to move" (77%) and "bladder" function (77%) rated for 13-25-year-olds. "Sit-to-stand" (79%), "leg/foot movement" (78%) and "arm/hand movement" (77%) were reported as priorities by 13-25-year-olds. The 13-25-year-olds highlighted "sit-to-stand" (100%), "eating/drinking" (54%), and "physical function" (94%) as their top unhappiness, importance, and research priorities, respectively. Significant differences between tetraplegia and paraplegia were found in "mobility in the community" (unhappiness item) for 13-25-years-old.

conclusionHealth domains were considered the top overall H&L priorities by parents/caregivers of 13-25-year-olds, compared to life domains reported for their 2-12-year-olds. This survey will aid rehabilitation professionals to engage stakeholders to implement a comprehensive SCI management program for the pediatric population.

Indexed as

Spinal Cord InjuriesActivities of Daily LivingAdolescentAdultCaregiversChildCross-Sectional StudiesHumansParaplegiaYoung AdultAdolescentChildLife and health prioritiesRehabilitationSpinal cord injuries

Identifiers

PMID35776093
PMCPMC10795593
OpenAlexW4283768773

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.