ArticleEuropean eating disorders review : the journal of the Eating Disorders Association2022
A comparison of the eating disorder service experiences of autistic and non-autistic women in the UK.
Article in European eating disorders review : the journal of the Eating Disorders Association, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 31 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
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Who cites it
31 citing papers in PubMed, 2 syntheses or guidelines pooled it, 55 citations in OpenAlex.
- A Mixed Method Systematic Review Into the Impact of ED Treatment in Autistic People and Those With High Autistic Traits.The International journal of eating disorders · 2025Pooled it
- Experiences of females on the autism spectrum through the perspective of minority stress theory: a review.Frontiers in psychiatry · 2025Pooled it
- Eating Disorder Focused Family Therapy with Autistic Children and Young People: A Narrative Review of Recent Developments.Current psychiatry reports · 2026Review
- Iatrogenic Harm, Psychotherapy, and Eating Disorders: An Urgent Call to Action.International journal of mental health nursing · 2026Article
- Iatrogenic harm in eating disorder treatment: a lived experience-led call for epistemic justice and accountability.Journal of eating disorders · 2026Article
- Research Tools for Eating Behavior in People with Autism Spectrum Disorder (ASD).Journal of autism and developmental disorders · 2026Review
- "It's been a very, very long and emotional journey, and the impact is huge": a reflexive thematic analysis exploring the experiences of parents of children and young people with ARFID.Journal of eating disorders · 2026Article
- Cognitive behavioural therapy is not universally evidence-based: implications for eating disorders.Journal of eating disorders · 2026Article
- Adolescent eating behaviours: associations with autistic and ADHD traits in childhood and the mediating role of anxiety.Journal of child psychology and psychiatry, and allied disciplines · 2026Article
- Finding the Prevalence of Autism in Female Mental Illness: Improving Child Development for an Underdiagnosed and Undertreated Population.Children (Basel, Switzerland) · 2025Article
- "No one was coming to save us": an interpretative phenomenological analysis exploring the experience of parents supporting their autistic daughter through anorexia nervosa.Journal of eating disorders · 2025Article
- Barriers and facilitators to treatment in severe and enduring eating disorders: a mixed-methods study of access, engagement, and lived experience.Journal of eating disorders · 2025Article
- Eating Disorder and Autism Collaborative project outline: promoting eating disorder research embedded in a neurodiversity-affirming culture.BJPsych bulletin · 2025Review
- Sex differences in psychiatric diagnoses preceding autism diagnosis and their stability post autism diagnosis.Journal of child psychology and psychiatry, and allied disciplines · 2025Article
- Using Photovoice Methods to Set Research Priorities With Autistic People With Experience of an Eating Disorder.Journal of clinical psychology · 2025Article
- Restraint for nasogastric tube feeding in young people with anorexia nervosa or atypical anorexia nervosa: a retrospective audit.Journal of eating disorders · 2025Article
- Understanding the child and adolescent eating disorder treatment experiences of autistic people and parents.Journal of eating disorders · 2025Article
- "From That Moment, Everything has Changed": The Experience of Women With Anorexia Nervosa Receiving a Diagnosis of Autism.European eating disorders review : the journal of the Eating Disorders Association · 2025Article
- Autism, ADHD, and Their Traits in Adults With Bulimia Nervosa and Binge Eating Disorder: A Scoping Review.European eating disorders review : the journal of the Eating Disorders Association · 2025Article
- Article
Corrections and comments
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Authors and funding
6 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveQualitative studies report that autistic women have poor experiences when being treated for an eating disorder (ED) and express that ED services are not appropriately tailored to meet their needs. It is unclear whether their experience differs to other women accessing ED services. The aim of the current study was to compare autistic and non-autistic women's ED illness history and experiences in ED services.
methodAn online survey about ED illness history and their experience with ED treatment was completed by 46 autistic women with a restrictive ED and 110 non-autistic women with a restrictive ED.
resultsDespite some similarities, there were three key differences in the experiences reported by autistic and non-autistic women. First, autistic women reported a longer duration of ED and being diagnosed with an ED at a younger age than non-autistic women. Second, autistic women reported accessing a broader range of healthcare settings and ED treatments than non-autistic women when being treated for an ED. Finally, autistic women rated their experiences of inpatient care, dietetic input, and cognitive behavioural therapy (CBT) as significantly less beneficial than non-autistic women when being treated for an ED.
conclusionThese findings increase understanding of autistic women's ED experience and can help to shape ED services and treatments to better accommodate the needs of their autistic clients.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.