ArticleThe journal of headache and pain2022
The headache registry of the German Migraine and Headache Society (DMKG): baseline data of the first 1,351 patients.
Article in The journal of headache and pain, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 16 papers.
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Who cites it
16 citing papers in PubMed, 32 citations in OpenAlex.
- Effects of Introvision, a self-regulation method with a mindfulness-based perception technique in migraine prevention: a monocentric randomized waiting-list controlled study (IntroMig Study).The journal of headache and pain · 2023Trial
- A scoping review on the characteristics of chronic pain registries.Pain reports · 2026Review
- [Migraine patients treated with CGRP(R) antibodies : Are they different from patients treated with nonspecific oral prophylaxis? Analysis from the DMKG headache registry].Schmerz (Berlin, Germany) · 2026Article
- Daily Reminders Increase Adherence to an Electronic Headache Diary (DMKG-App): Retrospective Longitudinal Cohort Study.JMIR mHealth and uHealth · 2026Observational
- Methodology and baseline characteristics of the China Migraine registry (CHIME): a nationwide, multi-center, prospective cohort study of 11,814 patients.The journal of headache and pain · 2026Observational
- [The Cluster Headache Impact Questionnaire : Measuring headache-related impairment in cluster headache patients].Schmerz (Berlin, Germany) · 2026Article
- Headache in the elderly: a retrospective study in a tertiary headache center.Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology · 2025Article
- Profiling the real-world migraine patient: public health insights from sociodemographic, lifestyle, and clinical data in the Italian National Migraine Registry (I-GRAINE).The journal of headache and pain · 2025Article
- [The headache questionnaire of the German Migraine and Headache Society (DMKG) : A new tool to improve headache care].Schmerz (Berlin, Germany) · 2025Review
- The World Health Organization Intersectoral Global Action Plan on Epilepsy and Other Neurological Disorders and the headache revolution: from headache burden to a global action plan for headache disorders.The journal of headache and pain · 2024Review
- Triptan non-response in specialized headache care: cross-sectional data from the DMKG Headache Registry.The journal of headache and pain · 2023Article
- Brazilian headache registry: methods and preliminary data of the pilot study.Arquivos de neuro-psiquiatria · 2023Observational
- Headache frequency and neck pain are associated with trapezius muscle T2 in tension-type headache among young adults.The journal of headache and pain · 2023Article
- New Migraine Drugs for Older Adults.Drugs & aging · 2023Article
- Headache classification and automatic biomarker extraction from structural MRIs using deep learning.Brain communications · 2023Article
- Correction: The headache registry of the German Migraine and Headache Society (DMKG): baseline data of the first 1,351 patients.The journal of headache and pain · 2022Article
Corrections and comments
- Erratum issued
Authors and funding
9 authors at 6 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundAlthough good treatment options exist for many headache disorders, not all patients benefit and disability continues to be large. To design strategies for improving headache care, real-world data observing standard care is necessary. Therefore, the German Migraine and Headache Society (DMKG) has established the DMKG Headache Registry. Here we present methods and baseline data.
methodsAccredited German headache centers (clinic-based or private practice) can offer participation to their patients. Patients provide headache history, current headache load (including a mobile headache diary), medication and comorbidities and answer validated questionnaires, prior to their physician appointment. Physicians use these data as the base of their history taking, and add, change or confirm some central information. Before the next visit, patients are asked to update their data. Patients will continuously be included over the next years.
resultsThe present analysis is based on the first 1,351 patients (1110 females, 39.6 ± 12.9 years) with a completed first visit. Most participants had a migraine diagnosis. Participants had 14.4 ± 8.5 headache days and 7.7 ± 6.1 acute medication days per month and 63.9% had a migraine disability assessment (MIDAS) grade 4 (severe disability). 93.6% used at least one acute headache medication, most frequently a triptan (60.0%) or non-opioid analgesic (58.3%). 45.0% used at least one headache preventive medication, most frequently an antidepressant (11.4%, mostly amitriptyline 8.4%) or a CGRP(receptor) antibody (9.8%). Most common causes for discontinuation of preventive medication were lack of effect (54.2%) and side effects (43.3%).
conclusionThe DMKG Headache Registry allows to continuously monitor headache care at German headache centers in both a cross-sectional and a longitudinal approach.
trial registrationThe DMKG Headache Registry is registered with the German Clinical Trials Register (DRKS 00021081 ).
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.