Evidence map›Paper›PMID 35773258›Full record

ReviewNPJ breast cancer2022

Improving the odds together: a framework for breast cancer research scientists to include patient advocates in their research.

Hillary Stires, Igor Bado, Thelma Brown, Martha Carlson, Isaac S Chan, Gloria V Echeverria, Andrew J Ewald, Bora Lim, Carla Lloyd, Julia Maues and 5 more

Open access · goldAbstract readReview
In one paragraph

Review in NPJ breast cancer, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
1.7field-weighted citation impact, top 15% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 7 citations in OpenAlex.

  1. Engaging Patient Advocates to Reduce Breast Cancer Disparities: Opportunities to Advance Breast Cancer Research and Engagement.Journal of cancer education : the official journal of the American Association for Cancer Education · 2026
    Article
  2. Article
  3. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors at 9 institutions in 1 country.

Hillary StiresFriends of Cancer Research, Washington, DC, USA. hstires@focr.org.ORCID http://orcid.org/0000-0002-0177-2024
Igor BadoBaylor College of Medicine, Houston, TX, USA.
Thelma BrownUnaffiliated Patient Advocate, Birmingham, AL, USA.
Martha CarlsonUnaffiliated Patient Advocate, Chicago, IL, USA.
Isaac S ChanUniversity of Texas Southwestern, Dallas, TX, USA.ORCID http://orcid.org/0000-0003-2623-3163
Gloria V EcheverriaBaylor College of Medicine, Houston, TX, USA.ORCID http://orcid.org/0000-0002-3772-9298
Andrew J EwaldJohns Hopkins University School of Medicine, Baltimore, MD, USA.ORCID http://orcid.org/0000-0002-1964-0740
Bora LimBaylor College of Medicine, Houston, TX, USA.ORCID http://orcid.org/0000-0002-4182-6058
Carla LloydUnaffiliated Patient Advocate, Salt Lake City, UT, USA.
Julia MauesGRASP, Washington, DC, USA.
Steffi OesterreichUniversity of Pittsburgh, Pittsburgh, PA, USA.ORCID http://orcid.org/0000-0002-2537-6923
Robert N RiterUnaffiliated Patient Advocate, Ithaca, NY, USA.
Kelly ShanahanMETAvivor, Lake Tahoe, CA, USA.
Alana L WelmUniversity of Utah Huntsman Cancer Institute, Salt Lake City, UT, USA.ORCID http://orcid.org/0000-0002-1412-1351
Josh NewbyTheresa's Research Foundation, Houston, TX, USA.
Baylor College of Medicine · USPatient Advocate Foundation · USFriends of Cancer Research · USGlobal and Regional Asperger Syndrome Partnership · USJohns Hopkins University · USLake Tahoe Community College · USThe University of Texas Southwestern Medical Center · USUniversity of Pittsburgh · USUniversity of Utah · US

Funding

Characterizing and targeting intra-tumor heterogeneity in triple negative breast cancer chemoresistance and multi-organ metastasisK22CA241113 · NCI · BAYLOR COLLEGE OF MEDICINE · PI ECHEVERRIA, GLORIA VITTONE · 2020 to 2022
$473k
NCI NIH HHS K22 CA241113
6 · The paper itself

Abstract

Including patient advocates in basic cancer research ensures that breast cancer research is intentional, supports effective communication with broader audiences, and directly connects researchers with those who they are striving to help. Despite this utility, many cancer research scientists do not work with patient advocates. To understand barriers to engagement and build a framework for enhanced interactions in the future, we hosted a workshop with patient advocates and researchers who do engage, then discussed findings at an international metastatic breast cancer conference to solicit additional feedback and suggestions. Findings demonstrate that researchers are uncertain about how to initiate and maintain relationships with advocates. We offer actionable steps to support researchers working with patient advocates to improve cancer research and accomplish our collective goal of improving lives of those who have been diagnosed with breast cancer. We hope that this initiative will facilitate such collaborative efforts.

Identifiers

PMID35773258
PMCPMC9247104
OpenAlexW4283714296

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.