ArticleAlimentary pharmacology & therapeutics2022
Inflammatory bowel disease patient-reported quality assessment should drive service improvement: a national survey of UK IBD units and patients.
Article in Alimentary pharmacology & therapeutics, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 27 papers.
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Who cites it
27 citing papers in PubMed, 38 citations in OpenAlex.
- The 'Cross-Trust' Histopathology Multidisciplinary Team: Report of meeting outputs and impact on paediatric inflammatory bowel disease management in a UK tertiary centre.JPGN reports · 2026Article
- Review
- An adapted health system access framework for avoidable inflammatory bowel disease admissions: a scoping review.Crohn's & colitis 360 · 2026Review
- The 2026 IBD UK Standards of healthcare service design and delivery for adults and children living with Crohn's disease and ulcerative colitis.BMJ open gastroenterology · 2026Article
- Impact of Delayed Diagnosis in IBD on Clinical Outcomes and Healthcare Delivery.Diagnostics (Basel, Switzerland) · 2026Article
- Comparative analysis of inflammatory bowel disease (IBD) patient- and service-reported quality of care using 2019 and 2023 UK benchmarking data from more than 26 000 adult patient respondents and 154 IBD services.Journal of Crohn's & colitis · 2026Article
- Research engagement and patient-reported quality of care: a cross-sectional study of UK inflammatory bowel disease services.BMJ open gastroenterology · 2026Article
- Models of outpatient care delivery in inflammatory bowel disease: a scoping review.Journal of the Canadian Association of Gastroenterology · 2025Article
- Inflammatory Bowel Disease Advice Lines: A Scoping Review.Crohn's & colitis 360 · 2025Article
- Patient Empowerment Among Children and Adolescents with Inflammatory Bowel Disease (IBD) and Parents of IBD Patients-Use of Counseling Services and Lack of Knowledge About Transition.Children (Basel, Switzerland) · 2025Article
- What do patients and informal caregivers value in IBD care? A narrative inquiry.BMC health services research · 2025Article
- The challenges of implementing earlier surgery for terminal ileal Crohn's disease-A qualitative study of the clinician's perspective.Colorectal disease : the official journal of the Association of Coloproctology of Great Britain and Ireland · 2025Article
- Exploring the multidimensional impact of caregiver burden in patients with inflammatory bowel disease.Frontiers in public health · 2025Article
- Framework of IBD Care Delivery Across Ages.Journal of Crohn's & colitis · 2024Article
- Patients and clinicians have different priorities when discussing pain in the IBD clinic.BMJ open gastroenterology · 2024Article
- Children and Young Adults With Inflammatory Bowel Disease Have an Increased Incidence and Risk of Developing Mental Health Conditions: A UK Population-Based Cohort Study.Inflammatory bowel diseases · 2024Observational
- Influence of multidisciplinary team care with abundant nurse staffing on patient-reported outcomes among patients with inflammatory bowel disease in clinical remission.Health and quality of life outcomes · 2024Article
- Psychological Care for People with Inflammatory Bowel Diseases: Exploring Consumers' Perspectives to Inform Future Service Co-design.Digestive diseases and sciences · 2024Article
- Associations between prior healthcare use, time to diagnosis, and clinical outcomes in inflammatory bowel disease: a nationally representative population-based cohort study.BMJ open gastroenterology · 2024Article
- Evaluation of emergency hospital admissions for inflammatory bowel disease as a possible marker of quality of care of British IBD inflammatory bowel disease units.Frontline gastroenterology · 2024Article
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Authors and funding
17 authors at 13 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundHealthcare service provision in inflammatory bowel disease (IBD) is often designed to meet targets set by healthcare providers rather than those of patients. It is unclear whether this meets the needs of patients, as assessed by patients themselves.
aimsTo assess patients' experience of IBD and the healthcare they received, aiming to identify factors in IBD healthcare provision associated with perceived high-quality care.
methodsUsing the 2019 IBD standards as a framework, a national benchmarking tool for quality assessment in IBD was developed by IBD UK, comprising a patient survey and service self-assessment.
results134 IBD services and 9757 patients responded. Perceived quality of care was lowest in young adults and increased with age, was higher in males and those >2 years since diagnosis. No hospital services met all the national IBD standards for recommended workforce numbers. Key metrics associated with patient-reported high- quality care were: identification as a tertiary centre, patient information availability, shared decision- making, rapid response to contact for advice, access to urgent review, joint medical/surgical clinics, and access to research (all p < 0.001). Higher numbers of IBD nurse specialists in a service was strongly associated with patients receiving regular reviews and having confidence in self-management and reporting high- quality care.
conclusionsThis extensive patient and healthcare provider survey emphasises the importance of aspects of care less often measured by clinicians, such as communication, shared decision- making and provision of information. It demonstrates that IBD nurse specialists are crucial to meeting the needs of people living with IBD.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.