ArticleClinical rehabilitation2022
How do stroke survivors and their caregivers manage post-stroke fatigue? A qualitative study.
Article in Clinical rehabilitation, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 1 of them a synthesis that pooled it.
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Who cites it
14 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Meta-synthesis of fatigue symptom experience and influencing factors in post-stroke fatigue patients in a qualitative study.Frontiers in neurologyPooled it
- Feasibility of Behavioral Intervention and Guided Stepping Training Early Post-Stroke (BIG STEPS): A Pilot Randomized Trial.Archives of rehabilitation research and clinical translation · 2026Article
- A phenomenological study of fatigue experience in community-dwelling older adults.BMC geriatrics · 2026Article
- Health-seeking behaviour, health service delivery and its perceived impact among stroke survivors in Sierra Leone: a longitudinal qualitative study embedded in the SISLE project.BMC health services research · 2025Article
- Co-designing and testing a management programme with peer support for post-stroke fatigue: Nottingham fatigue after stroke study (NotFAST3).Clinical rehabilitation · 2025Article
- Care dependence and caregiver fatigue in ischemic stroke survivors: a cross-sectional study.BMC nursing · 2025Article
- Exploring the dynamics of stroke survivors' care dependency, fatigue, and coping strategy in their caregivers: a structural equation modeling analysis.Frontiers in public health · 2025Article
- A roadmap for research in post-stroke fatigue: Consensus-based core recommendations from the third Stroke Recovery and Rehabilitation Roundtable.International journal of stroke : official journal of the International Stroke Society · 2024Article
- Mechanisms of Post-Stroke Fatigue: A Follow-Up From the Third Stroke Recovery and Rehabilitation Roundtable.Neurorehabilitation and neural repair · 2024Review
- Post-stroke fatigue and its correlation with family functioning in patients who have experienced a first episode of stroke.Frontiers in aging neuroscience · 2024Article
- A roadmap for research in post-stroke fatigue: Consensus-based core recommendations from the third Stroke Recovery and Rehabilitation Roundtable.Neurorehabilitation and neural repair · 2024Article
- Perceptions of Post-Stroke Fatigue among Health Care Practitioners: A Qualitative Interview Study.Medicina (Kaunas, Lithuania) · 2023Article
- Defining a Treatment Model for Self-Management of Fatigue in Rehabilitation of Acquired Brain Injury Using the Rehabilitation Treatment Specification System.Journal of clinical medicine · 2023Article
- Managing post-stroke fatigue: A qualitative study to explore multifaceted clinical perspectives.The British journal of occupational therapy · 2022Article
Corrections and comments
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Authors and funding
10 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesThe primary objective was to gain insight into the lived experiences of using day-to-day strategies to manage post-stroke fatigue.
designQualitative, descriptive study.
settingCommunity telephone interviews.
participantsA purposive sample of 20 stroke survivors with current, or previous, post-stroke fatigue, and 8 caregivers, who provided informal care or support, were recruited. MAIN MEASURES: Semi-structured telephone interviews were undertaken. Data were analysed using a framework approach.
resultsMost participants had found their own ways of coping and their personal strategies included acceptance of having fatigue; 'pacing' (spreading activities out and interspersing with rest periods); keeping a diary in order to plan activities and to identify 'trigger' activities which induced fatigue; talking to (and educating) others about having fatigue; using relaxation; and accessing professional advice and support. The burden placed on caregivers was considerable and they often had to oversee the post-stroke fatigue management strategies used.
conclusionsPost-stroke fatigue is managed in different ways and there was not one particular strategy that seemed effective for everyone. Most people in our study had had to devise their own ways of coping practically. Given the scale of this problem, which profoundly impacts the lives of both stroke survivors and caregivers, the management of post-stroke fatigue merits more attention and evaluation. However, this must be directly informed by those with lived experience.
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