ArticleBMC pediatrics2022
Parents' experiences with a home-based upper limb training program using a video coaching approach for infants and toddlers with unilateral cerebral palsy: a qualitative interview study.
Article in BMC pediatrics, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05533476 (Multi Sensory Stimulation And Priming), which is not on this map. Cited by 11 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Multi Sensory Stimulation And Priming (MuSSAP) in Infants (4-12 Months of Age) at Risk of Developing Unilateral Cerebral Palsy (uCP)
Who cites it
11 citing papers in PubMed, 17 citations in OpenAlex.
- Advancing knowledge translation processes in motor rehabilitation for children with cerebral palsy and developmental coordination disorder: insights from a scoping review.BMC health services research · 2026Article
- Feasibility of a Home-Based Occupational Positioning Program for Children With Spastic Cerebral Palsy: A Preliminary Study.Occupational therapy international · 2026Article
- Parental Concerns and Active Participation in Home-Based Vojta Therapy for Children with Global Developmental Delay: A Qualitative Study Using Interviews and Photo-Elicitation.Healthcare (Basel, Switzerland) · 2026Article
- Stress coping strategies in parents of children with central coordination disorders undergoing Vojta therapy: a two-month prospective observational study.Frontiers in psychology · 2026Article
- "Demanding, but Worth It": The Parental Experience of Home-Based Vojta Therapy for Children Presenting Global Developmental Delay-A Qualitative Study Using Photo-Elicitation.Journal of clinical medicine · 2025Article
- Experiences and Therapy Needs of Parents With an Infant at High Risk for Development of Unilateral Spastic Cerebral Palsy: A Qualitative Interview Study.Journal of child neurology · 2025Article
- Upper limb training for young children with unilateral cerebral palsy using video coaching: An explorative retrospective clinical study.Australian occupational therapy journal · 2025Article
- Improving Parent and Therapist Experiences of Codelivering Intensive Upper Limb Interventions for Children With Hemiplegia: A Qualitative Study Using the Theoretical Domains Framework.Child: care, health and development · 2025Article
- Barriers and facilitators to parent-delivered interventions for children with or infants at risk of cerebral palsy. An integrative review informed by behaviour change theory.Disability and rehabilitation · 2025Review
- Parents in the Driver's Seat-Experiences of Parent-Delivered Baby-mCIMT Coached Remotely.Journal of clinical medicine · 2024Article
- Hybrid Telehealth Pediatric Constraint Induced Movement Therapy Compared to In-person Intervention: A Case Series.International journal of telerehabilitation · 2023Article
Corrections and comments
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Authors and funding
7 authors at 3 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundAlthough early home-based upper limb training programs are promising, in-depth understanding of parents' experiences with these programs is still limited. We developed an early home-based upper limb training program for infants and toddlers (8-36 months) with or at risk of unilateral cerebral palsy using video coaching for parents. The aim of this qualitative study was to evaluate parents' experiences with the home-based training program using a video coaching approach in order to optimize implementation strategies.
methodsWe held semi-structured interviews with parents of 13 children with unilateral cerebral palsy, who participated in our program in the period from 2014 - 2017. On average, parents had delivered two training periods of the program at the time of the interviews. Interviews were analyzed using inductive thematic content analysis.
resultsWe identified three overarching interacting themes that shaped the experiences of parents with the program: 1) Parental learning comprising the subthemes parents' training competencies and the facilitative and reinforcing role of video coaching, 2) Parental load comprising the subthemes flexibility of the program, supportive network, competing demands, and child's mood and functional capacities, and 3) Parental perseverance comprising the subthemes beliefs and expectancies and seeing child's functional improvements.
conclusionsFor successful implementation of an early home-based upper limb training program using video coaching, support in delivering home-training from a therapist or from others within parents' social network, is needed to relieve parental load. Seeing functional improvements of their child on the videos increased parents' motivation to continue with the training. Positively phrased feedback from an occupational therapist stimulated parents' perseverance and training competency.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.