Evidence map›Paper›PMID 35767728›Full record

ArticleThe Journal of the Association of Nurses in AIDS Care : JANAC

Contrasting Comprehension of HIV Research by Adolescents, Young Adults, and Caregivers in Western Kenya: A Cross-sectional Analysis.

Jessica Dyer, Seema K Shah, Kawango Agot, Kate Wilson, Risper Bosire, Jacinta Badia, Irene Inwani, Kristin Beima-Sofie, Barbra A Richardson, Grace John-Stewart and 1 more

Abstract read
In one paragraph

Article in The Journal of the Association of Nurses in AIDS Care : JANAC. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Article
  2. Assessment of Consent Comprehension Among Kenyan Adolescents, Young Adults, and Parents: Comparison of Enhanced and Standard Consenting Procedures.The Journal of adolescent health : official publication of the Society for Adolescent Medicine · 2024
    Article
  3. Article
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Jessica DyerJessica Dyer, MPH, is a Research Scientist, Department of Child, Family, Population Health Nursing at the University of Washington, Seattle, Washington, USA. Seema K. Shah, JD, is an Associate Professor, Northwestern University Medical School/Bioethics Program at Lurie Children's Hospital, Chicago, Illinois, USA. Kawango Agot, PhD, is the Executive Director, Impact Research and Development Organization, Kisumu, Kenya. Kate Wilson, PhD, is a Research Scientist, Department of Global Health, University of Washington, Seattle, Washington, USA. Risper Bosire is a Research Monitor, Impact Research and Development Organization, Kisumu, Kenya. Jacinta Badia, MPH, is a Research Coordinator, Impact Research and Development Organization, Kisumu, Kenya. Irene Inwani, MD, MPH, is the Assistant Director, Kenyatta National Hospital, Nairobi, Kenya. Kristin Beima-Sofie, MPH, PhD, is an Acting Assistant Professor, Department of Global Health, University of Washington, Seattle, Washington, USA. Barbra A. Richardson, PhD, is a Research Professor, Department of Biostatistics, and an Adjunct Research Professor, Department of Global Health at the University of Washington School of Public Health and Community Medicine, Seattle, Washington, USA. Grace John-Stewart, MD, PhD, is a Professor, Global Health, Epidemiology, Medicine, and Pediatrics, University of Washington, Seattle, Washington, USA. Pamela Kohler, RN, MPH, PhD, holds a joint appointment in the Department of Child, Family, Population Health Nursing, University of Washington and the Department of Global Health, Seattle, Washington, USA.ORCID 0000-0003-0836-2316
Kawango Agot
Kate Wilson
Risper Bosire
Irene Inwani
Kristin Beima-Sofie
Barbra A Richardson
Grace John-Stewart
Pamela Kohler

Funding

Data-informed Stepped Care (DiSC) to Improve Adolescent HIV OutcomesUH3HD096906 · NICHD · UNIVERSITY OF WASHINGTON · PI JOHN-STEWART, GRACE C., KOHLER, PAMELA · 2020 to 2022
$3.1M
Data-informed Stepped Care (DiSC) to Improve Adolescent HIV OutcomesUG3HD096906 · NICHD · UNIVERSITY OF WASHINGTON · PI JOHN-STEWART, GRACE C., KOHLER, PAMELA · 2018 to 2019
$1.9M
NICHD NIH HHS UG3 HD096906NICHD NIH HHS UH3 HD096906
6 · The paper itself

Abstract

abstractAdolescent participation in research is critical to inform interventions that improve outcomes for this group. Adolescents and young adults living with HIV often present to care without caregivers, yet caregiver permission is typically required for those younger than 18 years. We evaluated whether understanding of key consent information differed between adolescents ( n = 1,393) and caregiver adults ( n = 169). Compared with caregivers, adolescents aged 10-14 years showed significantly lower understanding, whereas understanding for older adults living with HIV did not differ significantly from caregivers. Risks were the least understood consent information for all age groups. Our findings suggest that for low-risk research, waiving caregiver permission requirements will not compromise the ethical need to ensure understanding of research before enrollment and may allow adolescents greater access to potential research benefits.

Indexed as

CaregiversHIV InfectionsAdolescentAgedComprehensionCross-Sectional StudiesHumansKenyaYoung Adult

Identifiers

PMID35767728
PMCPMC12617612

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.